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oudave83's Message Board Messages

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Keep kickin behind...waiting after a pet is always the hardest...visualize positive thoughts only...give me the good news. Oudave 83

On Feb 19, 2014 1:40 PM Jpg1961 wrote:

Hi everyone, just a question please I know how much everyone has gone threw on this site so please don't take this as me being a whiner or complainer. I have a very high tolerance to pain my doctors never believe me when I say no that does not hurt.But "" target="_blank" rel="nofollow">http://hurt.But " target="_blank" rel="nofollow">hurt.But in the same way when I tell them I'm in un bearable pain they say O and just move on with the old so how are things going.I don't like taking med's and they know that we go head to head a lot about that.But "" target="_blank" rel="nofollow">http://that.But " target="_blank" rel="nofollow">that.But I'm to the point where it is un bearable.I was able to go out and do things before they got the bright idea to as they say ween me off my pain meds now I physically can not do much but sit in my chair and rock back and forth trying to not go crazy.i had a full radical in my neck and the un forgiving radiation to my neck and face that is what causes all the head,neck,shoulder pain but the pain in my lower back and legs is all I can say un bearable the only thing that helps is the dalaltin it's stronger than morphine the only thing that helps.Im "" target="_blank" rel="nofollow">http://helps.Im " target="_blank" rel="nofollow">helps.Im just trying to find out if others are having this issue and if so what are the options to getting control of the pain. I have a pain specialist I go to in phily at med of penn at Perlman cancer center.All "" target="_blank" rel="nofollow">http://center.All " target="_blank" rel="nofollow">center.All they seem to care about is that you might get addicted to the med's so they don't like giving them to us.It "" target="_blank" rel="nofollow">http://us.It " target="_blank" rel="nofollow">us.It will be one year on April 15 2014 since my last operation and my last radiation treatment #35 was July 28 2013 and the pain has never let up.Im "" target="_blank" rel="nofollow">http://up.Im " target="_blank" rel="nofollow">up.Im starting to have a hard time and I have come to far and to many people have given to much of them selfs for me,so just out of respect for these wonderful people I can not give up,I just don't know what to do,any input would be so appreciated.I don't mean to rabble on but I just don't know how to keep pushing on anymore.I know there are many people wishing this is all they had to deal with. Thank you for listening John
John, Keep hanging tuff...as a six year survivor, many here have walked in your shoes..... Some thoughts: Check for depression or an anxiety adjustment disorder...your life has changed. Get sufficient pain meds as well as lidoderm patches, compound creams lyrica...you must get your pain and depression in check..... If you are a abusing drugs address it and get help ASAP....it's a real challenge. See a pain and palliative division in your hospital...seek counseling as needed. Take one day at a time.... Check spinal cord stimulator for pain... Increase your spiritual growth....your higher power loves you unconditionally, explore nurture and grow that thru your church or faith organization.... Join a head and neck support group..... Find interests and people you enjoy.....people will never understand your experience unless they have been there...be forgiving of them and yourself. Fill your heart with gratitude and be confident you ban overcome each and every obstacle before you...honestly assess your situation without blame or guilt and take the appropriate action from there. The little c others call cancer got nuttin on you my man...keep hanging tuff with the spirit one day at a time. Oudave83. Out
U have ever right to feel the way u do........u r like a warrior who was given10 months shore leave but now must fight again on the front line...thank you for your bravery and courage and I pray for your peace of mind and serenity........don't ever let the small c others call cancer define you, because your post shows us you are so much more and forever the warrior and an example for each of us fellow head and neck warriors to imitate. Oudave83
Man I love that post...best to all my fellow warriors. Oudave84
Be bot afraid....as mark mentioned and our lord and savior mentioned repeatedly....much easier to say then to do...almost 5 years and I fight those fears monthly weekly and sometimes daily.......but u come out of it ok and a bit stronger each time. Oudave83
I agree with mark..hang tuff..think confidently..pet scans have a million false positives...oudave83 5 years out may 8 2013. Head and Mack stage 4 left side....that is why I stopped pets after year 3.....
That's why feeding tubes are encouraged...just keep drinking the highest calorie drinks like boast u can find and afford like at walmarts or SAMs club....grind it out and keep the faith..the weight will come back. later....u r in my prayers..faith hope and trust.......fight hard. Oudave. Ps. Uluru can do this together...believe....
The mucus is tuff stuff...there are suction machines u can rent for the 4-8 weeks then it simply does away...hang tuff y'all dave
Awesome invite. Just in dc amonth or so ago...happy new year. Dave
Love those affirmations. Great gratitude and warrior spirit. Dave
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About oudave83

Survivor, Patient
Squamous Cell Cancer, Head and Neck Cancer
After Treatment, Alternative Treatments, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Emotional Support, Spiritual Support, Acupunctur

My fellow cancer warriors: This is my letter to you. This my home computer. I am now a 5 year 4 month 2 weeks 1 day and 56 second head and neck survivor/warrior (but who is counting-LOL) with a neck dissection and 35 radiations and 7 weekly chemo sessions and a long tough recovery with mucositis, 7 day rash and fever that about killed me even after using twice every last round/battery of antibiotics(living on faith then) and an artery that busted after surgery that likewise almost killed me-dat was a close one.. ...and I have had painful radiation sores within the mouth and throat that took months to heal...and tons of ongoing chronic neck and shoulder pain from the neck dissection despite therapy etc(the thorn in my side St. Paul).....all in good time-I expect a full recovery whether I achieve it someday or not...it's the perseverance and attitude(ladies and dudes)and faith that counts....I am a mediator who mediates all kinds of legal disputes...I see how unresolved conflict and grudges and the need "to get even" in the name of "justice" drains people of their kindness and gratitude and that too often they fail to see that forgiveness has great power-especially in family/divorce matters...

I am here to learn and support those who have cancer, those who pray anxiously to be cancer-free within 5 years; those about to start cancer treatment, especially radiation and its side-effects along with chemo and sometimes the long battle back after cancer treatment and/or surgery or both. I am here to cheer on and advise those facing re-occurence, my worst fear, as their "Corner man".

I believe we can move mountains, as Jesus said, with the "faith of a mustard seed", but we must exercise our faith each day; that God our heavenly Father, Loves us more than we can imagine every minute of everyday-especially our worst days, nights and personal storms; that we hold ourselves back by our very own self-imposed limits and human frailties; and that with my personal champion, The Holy Spirit, also in our lives, along with Jesus and our Heavenly Father, Everything and Every Outcome is possible as Cancer Warriors-with a warrior's and fighter's heart and spirit-like the heart of David standing-up to Goliath's taunts-as we fight the Highly Overrated Pot-Banging, Big Bully with a small "c" others call "cancer"-this Big Bully who lives at the end of our neighborhood street and who "double dog dares us" to confront him or to walk on His side of the Street or to cross over his yard and grass.

I like Double cheeseburgers and fries and pep. pizza (can't enjoy the pep pizza yet(bummer), to watch and to play sports (GO OSU BUCKSSS) ,and to hit the gym hard again, love to laugh it up and tease and banter with my daughters, aunts and uncles, many nieces and nephews and cuzs, good friends and neighbors, love the outdoors with good friends, my oldest childhood friends are my dearest hidden treasures and I have more faults and annoying qualities than you can shake a stick at and it gets worse not better the older I get-darn it!LOL-true!

I am in my 40's(does that make me wiser or older or both?), and my picture I tried to upload went directly to SPAM.

I am OUDave because I went to Ohio University in Athens Ohio(I alone am not responsible for its partyyyy reputation-just some of it- graduating when big hair was still in style-lol, later went on to law school where I was forced to study 3 more years-ugh, I passed the bar exam through sheer luck and my name is Dave from America's heartland.

For some inexplicable reason, I dig Tigers, Leopards and Big Game Cats of all types....cuz you can't herd a cat-that's why they are sooo cool...and their beauty, independence, their stealth and athletic reflexes, and " serene warrior attitude" that I have never quite achieved but so admire and seek to imitate...wow. In a reversal of fortune, the eye of the Tiger-these very Warriors now stalk the The Big Bully who can never take from us what we don't willingly surrender or abandon to the Big Bully even as we draw our very last breath. The Big Bully should know that these patient and caregiving warriors always get off the canvas/mat.... because they each have the heart and soul of a true Prize Fighting Champion, a true warrior- always vigilant, yet serene, in the deep grasses ready for any test, scan,procedure, operation, treatment, pokes or prods...

And I say dude... and U da man...and got dat right way way way.... too much but I am here for anyone on this Board 24-7. If I don't understand your particular disease, I can be educated and learn so that I can support you, be your Corner Man, or at least make you smile or laugh if I am that lucky. Each of my friends enriches my life uniquely on this site for which I feel unspeakable gratitude and inner joy. Thanks friends, may the road always rise to meet you...and may the wind always be at your back.... and may God always hold you in the hallow of his hand.

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