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pcn17's Recent CancerCompass Activity

  • pcn17 has replied to a post on the message board

    I was dx with left neck cancer left tonsil the primary was it. It was solid black being the tonsil was the primary. It's been 11 years now. I give thanks to be on earth.  What ca mess and still trying to enjoy this life. 

    January 30, 2017 view post
    • pcn17 has replied to a post on the message board

      toni, prayers your way. know jesus loves you and is holding your hand through this. i cant imagine a second time, but i believe the Lord has a good watch for you Toni. keep us posted. love, prayer, hugz patricia

      March 21, 2014 view post
      • pcn17 has replied to a post on the message board

        john, i am exactly like you. mear and chicken horrible. however,i can eat a prime rib med rare at at a restaurant called salt grass, a little mexican restaurant who bbq chicken medium cooked. even water is tepid. all my friends understand, if not i find sometng soft and wait fot it to cool off. we all sem to be alike along the way. just do what it takes, and god bless. patricia

        March 21, 2014 view post
        • pcn17 has replied to a post on the message board

          it has been 8 years, and i have recentlywithin the last 6 months i am able to taste again and enjoy, i cant eat a steak, i chew and it sucks my salive, then have to spit it out. on bbq i ask for marbed meat, it has a lot of fat and soft. my food needs to b warm only hot food temperatre burns me. my tongue, roof of mouth is thinner. salt, acid drinks burns me. i eat jalapenos now, never did befor treatment. ice cream...

          March 21, 2014 view post
          • pcn17 has replied to a post on the message board

            we all have basically the same things happen, but since we all heal differently, might come later or not, its just very difficult to deal with at any time it happens. if i had to do it over again i would not have done radiation. but thats me. patricia

            March 21, 2014 view post
            • pcn17 has replied to a post on the message board

              Roland, seriously over a month now? I would have had an anwer to my question within 3 days . Sounds like you have strep. Still need to see a doctor. Do you have insurance is why you haven't gone already. Still dude! Luck to you! Patricia

              March 05, 2014 view post
              • pcn17 has replied to a post on the message board

                Roland, I am 8 years out. I found a lump in my neck, size of a peanut. PCP had me to for Ultrasound of neck, there was a mass. Went to ENT, he said my left tonsil was larger than right, left tonsil had black stuff behind it, did guided needle biopsy, it was cancer. My tonsil was the primary, once the lymph node is found, it was stage IV. It had been there for a whild, felt it in early Feb. Surgery done late Marc...

                March 05, 2014 view post
                • pcn17 has replied to a post on the message board

                  JC, I too had left tonsil, 2 left nodes positive, 11 taken out, I was radiated from one side to the next. Had Erbitux chemo. However, if I would have had a choice I probably would have went with the 5%. I feel to have more symptoms on the right side though. Even my right ear lobe is affected, I can't wear earings anymore, the whole bleeds, my right ear cloggs up a lot, my right side hurts more than lef...

                  March 02, 2014 view post
                  • pcn17 has replied to a post on the message board

                    Oh Leigh, I am so sorry to hear this after all this time. The only thing that use to cause me concern, worry, panick, anxiety was the thick mucous that would cause me to choke and me panick. I use a netty pod sinus rinse after they heard the way I would sound. I can just imaging how I would feel having this happen to me again, and I thought I had it so bad too at the time. I don't think i would even do it all over ag...

                    March 02, 2014 view post
                    • pcn17 has replied to a post on the message board

                       I am in total agreement with the details Beth. Same thing here and 8 years out. Everything is horrible. I can't believe I am in this state at this point and know it will be getting worse in time. The cost of all these side effects is just insame. I am going to finally file for disability and hope I get it. I have been damn denial too long now. So pushing this body anymore is already too much.  The most emb...

                      February 28, 2014 view post
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                      About pcn17

                      Patient
                      Head and Neck Cancer
                      Cancer Nutrition, Acupuncture, Alternative Treatments, Chemotherapy, Lifestyle, Massage Therapy, Radiation, Side Effects, Surgery

                      8 year survivor 8/11!!! ;-) Left tonsil primary, HPV 16, left neck dissection 2 out of 11 nodes were positive! Chemo & radiation 7 weeks. Have the dry mouth still, loss of saliva, neck necrosis,jaw pain. Still ongoing mucous, pleghem, just so annoying. Haven't' gained much weight back and eat very little. But am here trying surving life! God Bless

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