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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    That is a pretty long time post-surgery to have that kind of pain.  I would want to talk directly to the surgeon, and not to be able to sleep, although some light pain killer would be helpful.  There is a possibility that you have some infection or that you have developed an adhesion, where the cut area are not healing properly. Get on the phone first, as you do not want to go into a busy clinic setting un...

    April 04 at 10:16 PM view post
    • peggyznd has replied to a post on the message board

      As to the issue of whether the alleged extreme responses to 3-BP, the TLS<tumor Lysis Syndrome) would be possible once the 3-BP is out of the individual's system is not too complex.  There are poisons that are swift acting, and yet are able to be found in the system of the person, others which are very slow acting which can slowly poison someone, thinking here of low doses of arsenci, and in contrast, poisons...

      April 21 at 7:46 PM view post
      • peggyznd has replied to a post on the message board

        Thinking that 3-BP was 'too effective" in terms of how it managed the cancers of the patients fails to include the possibility that athe 3-BP was indeed very effective--as a poison.  There safety of the doses given may be under discussion in this trial, but the reality is that almost anything can be safely given in appropriately small doses.  A tiny bit of arsenic may be safe in minute doses, afterall. Kla...

        April 11 at 7:09 PM view post
        • peggyznd has replied to a post on the message board

          Dr. Brian Shuch at UCLA takes a special interest in the rarer version of kidney cancer, and is well-respected in the research community.  Do reach out to him.

          February 27, 2019 view post
          • peggyznd has replied to a post on the message board

            Lillian, I hope you have been able to get more information on these masses in your lungs, and that the oncologist is answering all your questions.   Keep in mind that it takes 2.5 centimeters to equal an inch, so these two are about 1 and 2 inches in size.  They can certainly be biopsied, which may be the important first step, unless they can be accurately identified by the CT scans.   Agai...

            February 12, 2019 view post
            • peggyznd has replied to a post on the message board

              Lung masses can come from other cancers, could be benign, but seem large for that.  You need to request a review of your kidneys, any other organs that are known to produce lung masses.  Getting another CT with contrast and with that, a review of your body in general is important.   I had a large kidney cancer which gave me lung metastases, thus my thoughts.  that was 14 years ago, by way of...

              January 31, 2019 view post
              • peggyznd has replied to a post on the message board

                Dear Dan, I must confess that I may have you confused with another Dan in my life, so much of which revolves around kidney cancer...and a bit obsessive about trying to educate patients and doctors about the issues that hit us so hard.  In any case, I continue to be well, and am most recently the renal cancer patient advocate as a volunteer for a large national network of oncologists who create trials, cooperate...

                January 27, 2019 view post
                • peggyznd has replied to a post on the message board

                  The Neaderthals kept poor records and didn't live very long; I do not think that their armamentarium included much more than spears and clubs.  

                  January 23, 2019 view post
                  • peggyznd has replied to a post on the message board

                    Johnny, I would recommend that you do very specific research on the very specific subtype of your wife's breast cancer subtype.  It is really important that we all recognize that the location of a cancer, whether breast or kidney or prostate, that there are multiple TYPES (or subtypes) of cancers that can hit each organ.  Most people understand taht there are a mix of blood cancers, and don't think that eve...

                    November 04, 2018 view post
                    • peggyznd has replied to a post on the message board

                      Dear Johnny, If your wife is eating so very little, with depressed appetite that is obviously not getting enough food into her system, she will not do well.  It is impossible to have enough energy to fight the cancer and meet the daily energy requirements of normal activity without the basic calories.  I would encourage you not to attempt to restrict her food, and encourage her to eat anything that appeals...

                      November 03, 2018 view post
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                      About peggyznd

                      Patient

                      I am a fourteen year survivor of Stage IV RCC, clear cell, post a radical nephrectomy and high dose interleukin. HD IL2 rid my lungs of 100s of tiny mets. Since that time, I have tried to help others learn about all their options, whether surgery, IL2, targeted therapies, highly directed radiation and the newer checkpoint blockade drugs. My blog at www.peggyRCC.com is part of that effort, with a concentration of RCC issues, lectures from others which can be read and printed, and all chosen for their medical value to patients in this battle.
                      For over a year, I have the renal cancer patient advocate for a large group of oncologists who create and support clinical trials and education. The group, SWOG, is a major contributor to the research which we all need, and are truly supportive of patient input!

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