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phils1950's Recent CancerCompass Activity

  • phils1950 has replied to a post on the message board

    Hi Raymond,  I was diagnosed in Jan 2015 with stage 4 colon cancer with mets to the para spinal lymph nodes.  Mine was found because I had pain in my back.  The original diagnosis was stage 3 because only 1 lymph node was involved.  Aftwter 6 rounds of chemo the PET scan showed all was clear.  I finished the original 12 rounds of chemo  and was all clear.  My oncologist is very aggr...

    January 10 at 11:26 PM view post
    • phils1950 has replied to a post on the message board

      i am currently working on my third year of remission from stage 4 colon cancer.  My cancer had spread to my paraortic lymph nodes and I wAas very fortunate that the chemo was all I needed to get into remission.  I had Folfox for 10 treatments and then 5FU with leukovorin from then on.  My PET scan has been clear since the 6th treatment.  I read some very good articles by Dr. Axel Grothby of the Ma...

      January 11, 2018 view post
      • phils1950 has replied to a post on the message board

        Hi  I am a stage 4 colon cancer survivor.  In remission for 2 years now.  My oncologist has me on the 5Fu for maintenance and I can stay on it as long as my body tolerates it.  I am scared to quit taking it.  The odds of surviving stage 4 colon cancer are not too good.  My scans and colonoscopy were clear and I see the oncologist tomorrow when I get my 5Fu.  3 lymphnodes in my back ...

        November 16, 2017 view post
        • phils1950 has replied to a post on the message board

          I totally understand where you are coming from.  My 47 year old son passed away in August from recurrent colon cancer that had metastisized to his liver and lungs.  His chemo was working well for one year and then just quit working.  His oncologist started a new chemo drug and he did radiation therapy to try to shrink the tumor in his lung.  Needless to say it didn't work.  However our oncolo...

          October 27, 2017 view post
          • phils1950 has replied to a post on the message board

            Handeled clinically most likely means with medication.  Probably Synthroid or Levoxyl.  I have Hashimoto's and I take Levoxyl and nothing else other that followups with my PCP.

            August 10, 2017 view post
            • phils1950 has replied to a post on the message board

              Keep in mind that what works for one person does not necessarily work for another.  Get all the information about what therapy is proposed for your mother.  Make an informed decision about what is needed based on the information given to you by people with knowledge of the disease and its process.  Most of the time chemo is recommended and you can try all the other remedies that someone has posted but ...

              July 20, 2017 view post
              • phils1950 has replied to a post on the message board

                While my mom didn't die from cancer we took care of her for 6 1/2 years.  She died from old age (93).  I would have taken care of her or either of my in-laws if need be.  As said in a post before me it is a fine example for the children and it does help to grow the family closer together.  My brother chose not to care for his mother because his wife couldn't get along with her.  My comment to...

                June 29, 2017 view post
                • phils1950 has replied to a post on the message board

                  Another update on my son.  He is currently in the hospital and we have just found out today that the whole year of chemo did nothing to clear the disease but kept it stable.  It did however go to the bones of the rib cage.  They are talking about radiation therapy and possibly immunotherapy.  I just hope they finally get it right.

                  June 08, 2017 view post
                  • phils1950 has replied to a post on the message board

                    Another update on this famiy.  My cancer is still in remission and I am still getting maintenance chemo which is the 5FU and Leukovorin.  I get this every other week.  My son who is now 46 and had his cancer return after 3 years is still fighting the disease.  He has mets to the liver and lungs.  The liver was clear on the last scan but the lungs are still with the disease.  He is still ...

                    June 02, 2017 view post
                    • phils1950 has replied to a post on the message board

                      Update on the genetic testing.  My son's cancer has returned with mets to the liver and lungs.  He has had 2 chemo treatments with folfiri and avastan.  This chemo regimen is harder than the folfox he received 3 years ago.  We now have to go back to the genetic councelor as there have been some new tests.  Our oncologists states there has to be something in our genes because of the strong his...

                      July 14, 2016 view post
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