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phils1950's Recent CancerCompass Activity

  • phils1950 has replied to a post on the message board

    Look for a good oncologist that specializes in colon cancer rather than the hospital.  Your treatment is only as good as the physician is.  A cancer center does not order the treatments the doctor does.  If you choose a good doctor then you will get the best treatment for your cancer that is available.

    September 23 at 7:27 PM view post
    • phils1950 has replied to a post on the message board

      Look for a good oncologist that specializes in colon cancer rather than the hospital.  Your treatment is only as good as the physician is.  A cancer center does not order the treatments the doctor does.  If you choose a good doctor then you will get the best treatment for your cancer that is available.

      September 23 at 7:27 PM view post
      • phils1950 has replied to a post on the message board

        CEA level only lets the doctor know that if it is increasing that it should be looked into further for the cause.  It is not ann indicator of cancer but a sign that something could be wrong.  My CEA only went down to 4 once and has been around 5-6 ever since.  All scans and colonoscopies have been clear.  In fact they want me to wait 3 years for my next colonoscopy.  I said I would wait 2 yea...

        September 23 at 7:23 PM view post
        • phils1950 has replied to a post on the message board

          I was diagnosed in Feb. 2015 with stage 4 colon cancer with mets to paralymphatic nodes.  I had 12 rounds of Folfox and now I am cancer free.  Cea  is anywhere from 4 to 6 but oncologist is not worried about that.  I have eliminated soda with the exception of ginger ale for upset stomach.  I am receiving maintenance chemo which consists of Leucovorin and 5 FU. only.  It's not harsh at al...

          September 23 at 7:18 PM view post
          • phils1950 has replied to a post on the message board

            I wouldn't worry about the top 5 cancer centers I would look for the best doctor.  I go to Abramson  but their reputation is not why I chose them.  The oncologist I have is very on top of all treatments and is willing to try whatever is necessary.  He has a lot of resources available to him and is not afraid to use them.

            June 01 at 6:55 PM view post
            • phils1950 has replied to a post on the message board

              i DIDN'T HAVE A REVERSAL BUT DID HAVE ABOUT HALF OF MY COLON REMOVED FOR COLON CANCER.  i NEVER HAD DIARRHEA BEFORE THE SURGERY BUT i DID HAVE A LOT OF IT FOLLOWING SURGERY.  i WORKED WITH MY SURGEON AND i NOW EAT 2 METAMUCIL WAFERS FOR INCREASED FIBER IN MY STOOL BUT i ALSO TAKE 1 lOMOTIL DAILY.  iT HAS WORKED QUITE WELL FOR ME.  iMMODIUM NEVER HELPED MY DIARRHEA.  HOPE THIS IS OF SOME USE T...

              May 03 at 12:20 AM view post
              • phils1950 has replied to a post on the message board

                Hi Raymond,  I was diagnosed in Jan 2015 with stage 4 colon cancer with mets to the para spinal lymph nodes.  Mine was found because I had pain in my back.  The original diagnosis was stage 3 because only 1 lymph node was involved.  Aftwter 6 rounds of chemo the PET scan showed all was clear.  I finished the original 12 rounds of chemo  and was all clear.  My oncologist is very aggr...

                January 10 at 11:26 PM view post
                • phils1950 has replied to a post on the message board

                  i am currently working on my third year of remission from stage 4 colon cancer.  My cancer had spread to my paraortic lymph nodes and I wAas very fortunate that the chemo was all I needed to get into remission.  I had Folfox for 10 treatments and then 5FU with leukovorin from then on.  My PET scan has been clear since the 6th treatment.  I read some very good articles by Dr. Axel Grothby of the Ma...

                  January 11, 2018 view post
                  • phils1950 has replied to a post on the message board

                    Hi  I am a stage 4 colon cancer survivor.  In remission for 2 years now.  My oncologist has me on the 5Fu for maintenance and I can stay on it as long as my body tolerates it.  I am scared to quit taking it.  The odds of surviving stage 4 colon cancer are not too good.  My scans and colonoscopy were clear and I see the oncologist tomorrow when I get my 5Fu.  3 lymphnodes in my back ...

                    November 16, 2017 view post
                    • phils1950 has replied to a post on the message board

                      I totally understand where you are coming from.  My 47 year old son passed away in August from recurrent colon cancer that had metastisized to his liver and lungs.  His chemo was working well for one year and then just quit working.  His oncologist started a new chemo drug and he did radiation therapy to try to shrink the tumor in his lung.  Needless to say it didn't work.  However our oncolo...

                      October 27, 2017 view post
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