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pretzel's Recent CancerCompass Activity

  • pretzel has replied to a post on the message board

    thanks Ame for theb come back. Merry CHRISTMAS AND A HEALTHY NEW YEAR .GOOD LUCK TO YOU.

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    • pretzel has replied to a post on the message board

      In december 1995 I was told i had m.m in stage 3. Only course to take was expermental double stem cell transplant. No promise of sucess. Only a profile from the trials to read where 40% of patients never made it through trial. began chemo. 1996 1 week every month for 4 months had stem cells extracted from me and went into hospital oct. 31 1996 given cells and came out nov. 23. second transplant began may 19...

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      • pretzel has replied to a post on the message board

        GOOD LUCK TO YOU AME H FROM SWEDEN? I LIKE YOUR POSITIVE OUT LOOK. KEEP UP THE FIGHT.

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        • pretzel has replied to a post on the message board

          On Aug 06, 2012 6:32 PMmissbrendawrote: On Jan 31, 2005 12:00 AMNoa_Gidonwrote: After effects of chemotherapy with TAXOL My friend finished a treatment of 12 weekly sessions of TAXOL and is suffering severe fatigue, numbness and pains in the legs which prevents her from walking freely, heavy tears and irritation of the eyes. The intensity of the effects built gradually with the treatments, and we expected t...

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          • pretzel has replied to a post on the message board

            On Aug 06, 2012 6:36 PMDlynn1210wrote: On Jul 30, 2012 5:00 AMllbcherry2wrote: Hello. I'm 27 and female. I have always had large tonsils.. About a year and a half ago, I had a tooth removed and the dentist pointed out that my left tonsil was enlarged. He said I should see my doctor immediately. I basically ignored it and forgot about it. Well I've been getting food stuck in the offending tonsil and it has m...

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            • pretzel has replied to a post on the message board

              On Aug 06, 2012 6:20 PMmissbrendawrote: On Jul 17, 2012 4:37 PMshawnielebleuwrote: My husband didn't have the chemo, so I can't help you on that.  However, as for the constant runny nose, have you tried the Neilmed Sinus rinses.  It also helps to put a teaspoon of white vinegar in each rinse.  Did  you lose your hair from chemo?  If you did you probably lost hair in your nose a...

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              • pretzel has replied to a post on the message board

                On Aug 05, 2012 7:09 AMMausyfwrote: Thankyou for the reply, guess when I get resulys from haemo this time I shall ask about the pain in my ribs, up to date never had any symptoms whatsover and just get tested every 3 months. Due to see her this week. I have a component of 26 but dont know how this works with overseas, a bit confusing! As i said before, every case is different, what works for me does not n...

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                • pretzel has replied to a post on the message board

                  On Aug 04, 2012 11:52 PMMausyfwrote: I think I may have told you it was my haemos decision to watch and wait and be monitored! I didnt say I wouldnt have chem, I just asked whether there were people out there that have refused some treatment and what the odds were. Sorry mausyf I got a wrong signal from you. But what i sent you today his not false info. I had to live it, i'll tell you the truth it's no...

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                  • pretzel has replied to a post on the message board

                    mausyf i think i have wrote to you before, if i haven't here's a heads up i was told i had ,mm in dec.1995 in stage three i had no pain no medical proublems at all except chlos. and tryic. which i was being montined by my g.p. monthly. On a routine visit he told me that he noticed a rise in some numbers in my blood test after checking back 6 months. He said i should see a hematologist and set up an appointment....

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                    • pretzel has replied to a post on the message board

                      Hello summerday I was diganosed with stage3 mm in dec 1995 went through double stem cell transplant 1996 & 1997. In 2010 i was started on velcade iv. Side effects were very bad since the fall of 2010 i've been on revlimid first with dex. Which was stopped due to side effects and warafrin. Theonly side effect i have had is neuropthy in the toes no rash at all. It seems that the drug reacts differently in ever...

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                      About pretzel

                      Survivor
                      Multiple Myeloma
                      Side Effects, Support

                      cancer survior told i had myloma dec.1995 stage 3 had double stem cell trans plant 1996-1997 full body radiation treated with aredia 1997 to 2002 then given zometa in 2002 - 2005 aug. told by doc. he must stop medication being he recieved notice that month the drugs can cause onj. in NOV. same year lost my first tooth over next 6 months all lower teeth and small piece of lower jaw broke off after tests i was told i was in reMission this happened Jan.2006 stayed there until 2009 april fell out of remissen and i am now being treated with velcade. igg. numbers just out of nornal range which are between 900-1600 they were over 2800 before treatment began. i have one more infusion this friday then cbc blood test same day then next friday main blood to see if numbers normal my last blood test before these last 4 infussions was 1700 so my fingers are crossed.

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