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purplewater's Recent CancerCompass Activity

  • purplewater has replied to a post on the message board

    Hello,  I have this issue, big lump on the left side of my neck, I tried so many alternative protocols, and to my surprise NOTHIG worked. So I have to do proton therapy to shring this tumor/mass, will be starting next week, my oncologist said it is treatable and curable. He also said that if theres any of the mass left, and if it is it is not suppose to be a big one, it is probably dead tissue, so it can be rem...

    July 07, 2017 view post
    • purplewater has created a new message board discussion

      Hello Everyone, I hope this is the right group, I was trying to get in into head/neck cancers group but could not find it. I was diagnosed 2.5 years ago, out of blue with squamos cell carcinoma of right tonsil ( it was also HPV + tumor). I am also a nurse, and sometimes that knowlege is not so bad, because you think u have "everything" Anyhow, I had proton therapy 35 treatments and 5 low doses od cisplatin. That "did...

      July 06, 2017 view discussion
      • purplewater has replied to a post on the message board

        Hi, I have a hard mass/tumor on the left side of my neck to, and I did 2 biopsys already, 1st one come back non conclussive, allthough they think it is malignant, no diagnosis, than did the second one, I asked the ENT to take ENOUGH tissue, because I dont want to do this the 3rd time, 8 days later, no report...the tumor/mass is getting bigger, despite all kinds of alternative protocols Iam doing, so I decided to do p...

        July 06, 2017 view post
        • purplewater has replied to a post on the message board

          Hi Linda, I am glad you went for second opinion, my name is Grazyna, I did reply to your post while ago, so I don't want to repeat what I wrote... we all g here to sport each other, and this is an amazing group. If I can be of any help , just message me , Please keep us posted, I will be very happy to share with you what helped me to bit this... my thoughts are with you, Sincerely, Grazyna

          September 14, 2015 view post
          • purplewater has replied to a post on the message board

            Hello LG, My name is Grazyna, I am a NICU nurse, and I never thought I would be diagnosed with squamos cell carcinima of the right tonsil at 53... I have been always healthy, and this was a surprise, actualy I took a look in my mouth with a flashlight, because I felt some "scratchy" feeling on the right side of my mouth. It looked weird, and enlarged, it was unusual to have just one tonsil bigger than the other... s...

            September 04, 2015 view post
            • purplewater has replied to a post on the message board

              Jacqueline, My name is Grazyna,  Thank you for sharing your husbands stoer, and ofcourse it become your to as a care giver. I was diagnosed with right tonsil SCC, ad it was very early 2 cm. My ENT did not see it... I did , made appointment right away, because I was suspiecious about my right tonsil beying enlarged and not the left one, anyhow... biopsy... and here we go ! HPV (+) right tonsil carcinoma. Well, ...

              June 14, 2015 view post
              • purplewater has replied to a post on the message board

                Hello,  and thank you for starting this discussion forum, I am sure there are more of us that are experiencing insurance problems. I had proton therapy for my right tonsil, this February, finished on 4/3/15, here in NJ at ProCure Proton Center. I was told by the financial team that this will be "out of network" and I probably will be responsible for 11K, I new that proton was better option for me, with less or ...

                June 12, 2015 view post
                • purplewater has replied to a post on the message board

                  Hello, my name is Grazyna, and I was diagnosed back in January of this year with right tonsil cancer, I was one of the lucky ones, because I have ProCure Proton Therapy here in New Jersey just 24 miles from my house. I received 35 proton treatments and 5 rounds of low grade cisplatin. I to was able to live normal life and continued to work just in the very end of 7th week I developed 2 sore spots deep in my throat,...

                  June 10, 2015 view post
                  • purplewater has replied to a post on the message board

                    Dee, Wow, you are in Western Australia? My hubby is a retired B-747 captain, and flew to Australia for so many years...he loved it beying there... Thank you so much for your kind words... you just made my day...and thank you for the info, I will definitelly check this out, nutrition is extrimelly important, in everyday life, but crutial when dealing with cancer, during and post therapy. Building Proton center is ex...

                    June 06, 2015 view post
                    • purplewater has replied to a post on the message board

                      Dee, thank you so much for your information. I joined this group back in January this year and Boy am I glad I did. All of you give so much great info and advise, and of ourse what better than listen from someone that went through this ordeal. I was fortunate to be able to do Proton Therapy, I have a center just 24 miles from my house. I was diagnosed in January with right tonsil cancer. It was stage 2 , 2 cm, and...

                      May 27, 2015 view post
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