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qedward's Recent CancerCompass Activity

  • qedward has created a new message board discussion

    I have had symptoms of carcinoid tumors for over a year, nausea, dirarrea, flushing but they cannot find them on any of the many test and scans such as octreotide and pet scans.  I am to the place that i can barely stay out of bed due to this symptoms and extreeme extreme fatigue.  Please if any one knows anything else I can do please let me know. They are planning a diagnostic laproscoptic procedure to see...

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    • qedward has created a new message board discussion

      I have been diagnosed with carcinoid syndrome.  I have all the symptoms, flushing, nausea, direrra, etc. but they have not been able to find any tumors after many extensive tests.  Is there anyone out there that may have the same problem and could you let me know any other way to find out what is going on.  I am so fatigued I can hardly make it each day.  I am on octreotide injections now but they...

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      • qedward has created a new message board discussion

        My husband starting having symtoms several months ago, extreme nausea, flushing, extreme fatigue.  He has had every test immaginable, ct scans  of every sort, endoscopic ultrasound. His chromogranin test was 1600 but dropped to 300 after stopping his protonix for acid reflux.  They cannot find anything but we know something is wrong.  He is  just not himself and tired of feeling so so bad.&nb...

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