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quincypp's Recent CancerCompass Activity

  • Quincypp has replied to a post on the message board

    well I saw my dr on Friday - turns out that the first hema didn't do all the tests - missing the immoxification test that would have identified the mprotein and if there was a spike. The dr isn't thinking this is MGUS or MM - rather Lupus. So we'll see - did more blood work - go back Nov 23. Did anyone go down this path first?

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    • Quincypp has replied to a post on the message board

      My husband had testicular cancer - he was lucky his hadn't spread, was slow growing and was constantly told well if you had to have a cancer this one is a good one to get since the cure rate is so good (96% survival over 15 years or something). He still had his testical removed (that alone was tramatic) had radiation therapy (not pleasant). he didn't look sick. Didn"t act sick. He has been cancer free for 15  ye...

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      • Quincypp has created a new message board discussion

        I am hoping this can be explained to me. I see my hema/onc next week (no diagnosis of anything yet) i have an abnormal lambda/kapp ratio (2.3) on my Free Light Chain test with the free kappa measuring 45.5 mg/L. But my SPE tests show only a slightly higher alpha globulin result different labs have different ranges - but am always just over the normal for either lab. Reading the MM Canada page it says the immoxificati...

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        • Quincypp has replied to a post on the message board

          Keep us posted. I wish you both all the best. Quincy

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          • Quincypp has replied to a post on the message board

            Hi Amy - was wondering - has you husband seen the the hema/oncologist yet? Did he get a diagnosis? My thoughts are with you and hope for the best. I see my hema/oncologist Oct 26 - similar to your hubby over  a year of not feeling well (night sweats and fevers too)and finally an abnormal lamda/kappa ratio and other blood work that has continuously come back abnormal and they have mentioned MM to me as well...

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            • Quincypp has replied to a post on the message board

              i don't have any answers sorry - but wanted to let you know I too just had a FLC test and got a high ratio - mine was 2.4 and had a high Kappa level. My SPEP came back basicaly normal. My dr is sending me to a hematologist - go Oct 26. I have had a history of unexplained fever, night sweats, fatigue and generally not feeling well and gone through several tests. my new GP was very concerned about this ratio and said i...

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              • Quincypp has created a new message board discussion

                i just got the appt to my new hematologist appt - after finding abnormal FLC levels - my lamda/kappa ratio was high. Along with several other symptoms. They indicated this could be monoclonal gammapathy. Was wondering of any advice of questions I should be asking this new hematologist?

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                • Quincypp has replied to a post on the message board

                  I finally met my new family dr today. I am pleased with his decision that my last blood tests need follow up and that he feels I need a 'better" hematologist - his exact words. He said an abnormal lambda/kappa ratio is not something to be ignored and usually used as a marker for MM. He wants to review my entire chart over the next couple of days and will get back to me but based on our initial conversation today he f...

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                  • Quincypp has replied to a post on the message board

                    Is this available in printed format anywhere?

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                    • Quincypp has replied to a post on the message board

                      Thanks for your reply. I am meeting my new GP soon - and will discuss all with him. He is young so hopefully he is up to speed on this new FLC test. My old dr recommends him highly and says he is well connected to many specialists. While I don't want to dwell on the what if's I do want to figure out what is wrong so I can at least try to treat the symptoms or the condition and not get dismissed (I had one dr who...

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