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rayala333's Recent CancerCompass Activity

  • rayala333 has replied to a post on the message board

    Join the Whipple Warriors which consists of thousands of Whipple patients from all around the world. Facebook:Whipple surgery survivor group and also website. Whipplewarriors.org.

    April 29, 2015 view post
    • rayala333 has replied to a post on the message board

      So, it seems that I haven't finished my first cup of coffee today. The name of the organization is: Carcinoid Cancer Awareness Network. CCAN which will now be called NCAN to better reflect the community served. If I knew how to edit the above post, I would have! Lol

      April 29, 2015 view post
      • rayala333 has created a new message board discussion

        Did you know that there are over 125,000 Neuroendocrine cancer patients in the U.S. alone? The rate is growing by 5% each year. Learn this and much more by joining The Carcinoid Awareness Action Network. Join thousands of other NET patients who keep up to date on the latest developments for our type of cancer. Also, many doctors call this by the word Carcinoid but the medical community is changing its verbag...

        April 29, 2015 view discussion
        • rayala333 has replied to a post on the message board

          I wanted you to know that there is a group on Facebook called: Whipple Surgery Survivor Group and there are over 700 Whipple patients on the page who all share the Whipple in common and the issues we encounter. It is a private group so no one in your personal feed will see your posts and issues. You are welcome to join. Perhaps someone there can help you with what they have found to work. Ronda Ayala Facebook: ...

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          • rayala333 has replied to a post on the message board

            I am inviting you to join our Facebook page: Whipple Surgery Survivor Group. There are now almost 700 Whipple Warriors from all around the globe who have been through what you are going through. Our motto is: You are not alone! We also have a webpage: www.whipplewarriors.org We have all been in your shoes!

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            • rayala333 has created a new message board discussion

              Did you know that there is a Facebook support group called: Whipple Surgery Survivor Group?  They have over 370 people from all around the world who have had the whipple.  FYI

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              • rayala333 has replied to a post on the message board

                I don't personally know the answer but if you join the facebook page: Whipple Surgery Survivor group, someone on that page may have the answer. 

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                • rayala333 has created a new message board discussion

                  Did you know there is a Facebook page dedicated to Whipple Patients.  It's called: Whipple Surgery Survivor Group Everyone on there has either had a whipple, will have one or is the family of a Whipple patient. We discuss our own experiences and it is not intended for medical advice or management. We have several patients who have the Post Whipple Pains/attacks. That is one subject that seems to occur to post...

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