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redkat68's Recent CancerCompass Activity

  • RedKat68 has replied to a post on the message board

    Geroge, Please read all the responses to your question; but most especially Peggy's answer. We think of cancer as all encompassing but it's not and depending on the specific type of tumors that you have that will determine the test that you need to have. Because Eric has pancreatic neuroendocrine carcinoid if we relied on PET scans, he would be dead. PNeTs are slower metabolizing tumors than other cancers and PE...

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    • RedKat68 has replied to a post on the message board

      I wish more caregivers would talk about this. His problems started before his diagnosis due to the tumor load in his liver. We (the family) actually thought he had early onset Alzheimer's. Then the chemo and the surgeries and the pain medications (no steroids) have all added to LOTS of memory loss and lots of lost time. By lost time I mean statements like, "Wow they put a Mexican grocery in on the corner there. Just ...

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      • RedKat68 has replied to a post on the message board

        Excellent Article, Thanks for the link!

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        • RedKat68 has replied to a post on the message board

          Eric is actually getting his liver mapped next week for the Y90 SIRS treatment here in Louisville. We are blessed to have some of the finest hospitals in the world here and when we met with the carcinoid team down at Oschner they referred us to Dr Scoggins here at UofL. I can't imagine the out of pocket expense if we had to go to Switzerland. His appointments are 2 and 4 weeks apart with a total of 3 (1 liver mappin...

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          • RedKat68 has replied to a post on the message board

            @JenHolm25 How are you? Last I had heard you were having surgery! If you don't mind my asking? Had your cancer metastisised to your liver yet? Eric hasextensiveliver mets, I am beginning to suspect hepatic encephalopathy. Something to discuss with the oncologist next visit, I suspose. I stumbled across it on another forum where a caregiver was discussing end stage liver cancer.

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            • RedKat68 has replied to a post on the message board

              We were just at the oncologist to day and my husbands doctor said "cancer breaks a lot of things". Sometimes its hearts. I am thinking of what your Mother said and without knowing your situation perrhaps she is preparing for the day when she will need your help caring for your father. Maybe she fears that if you come now you will not be able to come down later? Perhaps she doesn't have the emotional strength to care...

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              • RedKat68 has replied to a post on the message board

                Hope your doing well!

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                • RedKat68 has created a new message board discussion

                  I was hoping to open this dialogue because I believe this may be an elepant in the room for many of us dealing with the Neuroendocrine Carcinoid Cancers. For the last 2 years before Eric was finally daignosed I believed he was spiraling down toward alzheimers at the early age of 50 (it runs in his family) but any talk of his memory lapses brought about swift anger. His mood swings were horrenous. living wit...

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