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riverak's Message Board Messages

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RE: metastatic cancer

by riverak - August 12 at 4:34 PM

On Aug 11, 2019 3:43 PM jnagle75 wrote:

Is it possible to develop a pancreatic mass that is 6cm by 4cm in the body of the pancreas that has metastisized to the liver and peritoneal cavity in 7 months. Pet scan in 6/2018 no sign of any maligancy CT of chest 1/2019 abnormal pancrease recommended MRI of abdomen. MRI of abdomin 2/2019 stage 4 metastatic pancreatic cancer. Just doesnt make sense that it developed and spread that quickly. Also had CT of abdomen and pelvis 4/2018 showed nothing?? 

 We understand what you may be going through. We would like to learn more about your situation, discuss treatment options and determine if CTCA is a good match for you. We can be reached at 847-342-6493.

Cancer Treatment Centers of America


On Aug 11, 2019 9:54 PM artisarluk wrote:

Dear All,

I'll be prayin' for everyone here..

A friend of mine has just been diagnosed with myxoid MFH.

I was just wondering if you guys could recommend to us a very good hospital, on this disease, in the USA?

I appreciate your help with this.

So sorry to hear about your friends diagnosis.  Just like there are many different types of cancer, there are also many different treatment options that might be used. At CTCA, our integrative approach to treating cancer includes developing a customized treatment plan designed specifically for each patient. Please call us at 847-342-6493 for more information or to schedule an appointment. 

Cancer Treatment Centers of America


On Aug 08, 2019 5:58 PM KathyLovesBlue wrote:

I recently had a tumor removed from my hand and pathology showed a diagnosis of Myoepithelial neoplasm, which is extremely rare. (And I think even more so on the hand.) Pathology showed the tumor to be "at least borderline malignant and treated accordingly." Does anyone know of a specialist who treats soft tissue sarcomas---and has experience with this type of tumor specifically? (It's so rare, there's not much in the medical literature about it.) I would appreciate any advice to consider. Thank you---

Just curious if the tumor was fully removed by surgery or if further treatment is recommended?  CTCA does treat soft tissue sarcomas. We would be happy to discuss this directly with you at your convenience at 847-342-6493.

Dealing with cancer can be

overwhelming.

We have experts available

who can provide guidance and support

to you and your loved ones

during this trying time.

To schedule an appointment or learn more,

we're ready to assist you at

847-342-6493.

Cancer Treatment Centers of America

RE: stage 3b lung cancer

by riverak - July 18 at 4:57 PM

On Jul 17, 2019 2:18 PM staceyr wrote:

On Oct 26, 2018 11:17 PM angel.s wrote:

My mom was diagnosed with lung cancer back in june and she started chemo/radiation and 11 days of target therapy drugs i July. Her PDL-1 is 95% but the oncologist didn't use immunotherapy. She has two tumors one on in the left side of the lung and one on top of her right collar bone. 

Her bio markers on her blood work is normalized... but we are not sure if the tumor has just shrunk or disappeared completely. In 3 weeks she will have her first CT scan post treatment and the doctor says 50% chance she will be cancer free....

but there is one caveat-- the type of cancer that had already spread to her lymphnode will have over 70% of reoccurance rate. This is so upsetting because she is being so resilient through the process and responding so well with treatment. and he didn't give her immunotherapy to at least try to kill off the hiding cancerous cell with her PDL 1 is almost a perfect match??

It's such a blessing with what type of cancer she is responding to treatment. It will be exhausting to think cancer might return every day before check ups. cancer sucks! 

Does anyone have similar circumstance? Does immunotherapy works the same at reoccurance?

All the best to everyone. 

Angela

Hi Angel.

I'm sorry to hear about your mom. How is she doing now? 

My Dad was recently diagnosed with the same thing, and he just started chemo and radiation. Any advice? 

All the best, 

Stacey

We are so very sorry to hear about this challenge and would like to provide some guidance to you in this time of need. Getting another opinion can be very beneficial in comparing treatment options and supportive therapies.  One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
Cancer Treatment Centers of America
Sr Patient Advocate

RE: stage 3b lung cancer

by riverak - July 17 at 3:32 PM

On Jul 17, 2019 2:18 PM staceyr wrote:

On Oct 26, 2018 11:17 PM angel.s wrote:

My mom was diagnosed with lung cancer back in june and she started chemo/radiation and 11 days of target therapy drugs i July. Her PDL-1 is 95% but the oncologist didn't use immunotherapy. She has two tumors one on in the left side of the lung and one on top of her right collar bone. 

Her bio markers on her blood work is normalized... but we are not sure if the tumor has just shrunk or disappeared completely. In 3 weeks she will have her first CT scan post treatment and the doctor says 50% chance she will be cancer free....

but there is one caveat-- the type of cancer that had already spread to her lymphnode will have over 70% of reoccurance rate. This is so upsetting because she is being so resilient through the process and responding so well with treatment. and he didn't give her immunotherapy to at least try to kill off the hiding cancerous cell with her PDL 1 is almost a perfect match??

It's such a blessing with what type of cancer she is responding to treatment. It will be exhausting to think cancer might return every day before check ups. cancer sucks! 

Does anyone have similar circumstance? Does immunotherapy works the same at reoccurance?

All the best to everyone. 

Angela

Hi Angel.

I'm sorry to hear about your mom. How is she doing now? 

My Dad was recently diagnosed with the same thing, and he just started chemo and radiation. Any advice? 

All the best, 

Stacey

We are so very sorry to hear about this challenge and would like to provide some guidance to you in this time of need. Getting another opinion can be very beneficial in comparing treatment options and supportive therapies.  One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
Cancer Treatment Centers of America
Sr Patient Advocate

RE: Tonsil cancer

by riverak - July 09 at 1:47 PM

On Jul 09, 2019 10:49 AM Danny43 wrote:

Hi guys sorry for my late response. 

I'm stuck without answers. I feel so sick,  now I feel like my neck is on fire all the time, eating is even more difficult.  I don't know what else to do  . Im totally lost.

We are so very sorry to hear about this challenge and would like to provide some guidance to you in this time of need.   I would like to learn more about what testing you have had so far and how we can help. One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
Cancer Treatment Centers of America
Sr. Patient Advocate

RE: Update

by riverak - July 09 at 1:44 PM

On Jul 09, 2019 11:43 AM d3v87 wrote:

All right...after 1 year this is what happened:

I was diagnosed with Hodgkin's lymphoma nodular sclerosis. I did ABVD and Radiation and now just did a follow up CT Scan which is not clear, but we need to discuss with doc. 

Chemo was hard. Everything about this, especially mentally, was very hard. For now I feel fine, back to work, some sport, and so. But if I have relapsed so quickly, prognosis is poor. 

We are so very sorry to hear about this challenge you are facing and would like to provide some guidance to you in this time of need. We are happy to discuss ways that we may be able to help.  One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
Cancer Treatment Centers of America
Sr Patient Advocate

RE: Lost Cause

by riverak - June 21 at 7:16 PM

On Jun 21, 2019 5:24 PM PFFlyer wrote:

We have just been told that my husband has two months to live.  He and I, have battled primary liver cancer since February of 2017.  I won't go into everything that has gone on/and or happened but it looks like he is losing this battle.  I just have to share what happened recently at one of his oncology appointments.  In discussing, the prognosis, I expressed that we will continue to fight.  The doctor looked at me and said Mrs.-----, you need to just give up and consider your husband's comfort.  My husband who is an extremely positive person and has managed this disease with much courage and hope, was deflated.  He did not want to know that he only has two months to live, he prefers to live each day with a positive approach.  He's not stupid, he just doesn't want those words to be in his mind every day for the rest of his life.  His affairs are in order so there is nothing left to prepare. I am so angry with these doctors that they believe every patient needs to be told to their face that they are dying. This is not my husband's personality!  I've been married to him for 51 years.  I asked the doctor to share with me what to expect and though all the paperwork gives me the authority to discuss all aspects of my husband's medical, the doctor refused.  He would only talk to the both of us.  Angry, Angry, Angry!

We are so very sorry to hear about this challenge that your husband is facing and would like to provide some guidance to you in this time of need. One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,

Karen Rivera
Cancer Treatment Centers of America
Community Engagement and Outreach Team

On Jun 20, 2019 4:24 PM Chris3455 wrote:

Hi All,

My husband is supposed to have 27 radiation treatments to his esophagus.  They have only suggested this recently. He has had 11 treatments so far. But, the radiation has caused him to have such severe nausea that he has had to skip at least 5 treatments. Has anyone had this response? I mean every hour he has been sick. 

Also, he is in his 3rd year of this disease and has been on Keytruda for the last 2 years.  They say because he still has mets in his lymph nodes and kidney they will not operate.

He was working and going to job sites before radiation and now he can barely get out of his lazy boy.  I'm so worried about him.  He is supposed to go get keytruda and radiation today, but i'm afraid he might have to cancel again! 

Thank you, 

Marcia 

Marcia,

We are so very sorry to hear about this challenge that your husband is having and would like to provide some guidance to you in this time of need. Have you considered getting another opinion for other treatment options and supportive therapies?  One of our experienced Patient Advocates is available now to assist you at 847-342-6493. Please feel free to reach out anytime.

Looking forward to helping you,
Karen Rivera
CTCA Community Engagement and Outreach Team

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About riverak

Caregiver
Bile Duct Cancer, Bladder Cancer, Bone Cancer, Brain Cancer, Breast Cancer, Cervical Cancer, Colon Cancer, Endometrial Cancer, Esophageal Cancer, Ewings Sarcoma, Fallopian Cancer, Gallbladder Cancer, Gynecologic Cancer, Head and Neck Cancer, Hodgkins Disease, Jaw Cancer, Kidney Cancer, Laryngeal Cancer, Leukemia, Leukemia - (ALL), Leukemia - (AML), Leukemia - (CLL), Leukemia - (CML), Liver Cancer, Lung Cancer, Lung Cancer - Adenocarcinoma, Lung Cancer - Non-Small Cell, Lung Cancer - Oat Cell, Lung Cancer - Small Cell, Lung Cancer - Squamous Cell, Lymphoma, Melanoma, Multiple Myeloma, Nasal Cavity Cancer, Non-Hodgkins Lymphoma, Oral Cancer, Osteosarcoma, Other Cancer, Ovarian Cancer, Pancreatic Cancer, Pharyngeal Cancer, Prostate Cancer, Rectal Cancer, Renal Cell Cancer, Salivary Gland Cancer, Skin Cancer, Skin Cancer - Basal Cell, Skin Cancer - Squamous Cell, Squamous Cell Carcinoma, Stomach Cancer, Testicular Cancer, Throat Cancer, Thyroid Cancer, Tongue Cancer, Tonsils Cancer, Uterine Cancer, Vaginal Cancer, Vulvar Cancer
Cancer Diagnosis, Cancer Treatments, Chemotherapy, Conventional Treatments, Diagnostic Imaging, Insurance, Naturopathic Medicine, Photodynamic Therapy, Radiation, Side Effects, Support, Surgery

I have had the honor of helping patients and families over the last 13 years working as a Patient Advocate for CTCA. I can help with deciding about getting another opinion, answering questions about our evaluation process, scheduling an appointment at one of regional locations and helping to make the intake process a smooth one. Our Mother Standard of Care is unique and every patient deserves to be treated with the care and compassion you would give to a family member.

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