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ruedragon's Recent CancerCompass Activity

  • ruedragon has replied to a post on the message board

    I suggest that you go on Facebook and find the Waldenstrom Macroglobulinemia provate group and ask to join. You'll get a wealth of information and support from an excellent group of WM patients and family. https://www.facebook.com/groups/wmsupportgroup/?ref=bookmarks 

    December 10, 2017 view post
    • ruedragon has replied to a post on the message board

      Just now saw your post! If I were you, I'd probably go to Dana Farber, probably not Sloan Kettering, just because I just don't see any articles coming out with that institution on them. I go to Mayo Rochester, see Morie Gertz for hematology, Michelle Mauermann for neuropathy, and beleive I'm getting top care. And I would very strongly urge you to join the MGUS Information and MGUS Support Facebook groups, much more a...

      October 17, 2017 view post
      • ruedragon has replied to a post on the message board

        I completely agree with the advice to head for Mayo Rochester where the neurologists and hematologists have a lot of experience with our rather rare disorder/neuropathy. It was there that MGUS was defined in the first place. You may be interested to know that there is some very important research in the design phase that will look at how anti-MAG IgM MGUS differs from IgM MGUS at the molecular level, a necessary step...

        May 05, 2016 view post
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