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rylee's Recent CancerCompass Activity

  • rylee has created a new message board discussion

    Has anyone used "Store My Tumor" . They say the can store the tissue so it is still viable, by cryopreservation rather than flash freezing .

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    • rylee has created a new message board discussion

      Has anyone used Store My Tumor to bank their Tumor tissue. They say they can cryopreserve viable Tumor tissue. I would like any input from others.

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      • rylee has created a new message board discussion

        Has anyone in an anti-PD-1 trial like Mk-3475 experienced nausea and vomiting and/or extreme fatigue?

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        • rylee has replied to a post on the message board

          Thank you so much for your replay. I would very much like to,get more information from you. I was wondering how long you were on the vemurafinib, when the side effects started to show up, if you knew any other patients on it and if any of them had longer responses. Any more info would be so greatly appreciated. Thank you so much. Have you looked into the PD-1 or PDL-1 tirials. Most of these trials are o...

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          • rylee has created a new message board discussion

            I was trying to find someone who has used either dabrafenib or vemurafenib to find out about side effects and how well they worked. My daughter has a BRAF mutated brain Tumor and we are looking at using one of the BRAF inhibitors. We have an appointment with her oncologist so any information ASAP would be greatly appreciated.

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            • rylee has created a new message board discussion

              I was trying to find someone who has used either dabrafenib or vemurafenib to find out about side effects and how well they worked. My daughter has a BRAF mutated brain Tumor and we are looking at using one of the BRAF inhibitors. We have an appointment with her oncologist so any information ASAP would be greatly appreciated.

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              • rylee has replied to a post on the message board

                Yes, be very careful with DCA. My daughter was in the study of Dr. Michelakis 's. She was taken out of the study because of extreme peripheral neuropathy and it has been four years now since she has been off the DCA and she still has some neuropathy. If you start to experience neuropathy take a break from the DCA or lower the dosage. My daughter has a brain tumor and my husband has prostate cancer so I am on ...

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                • rylee has created a new message board discussion

                  Does anyone know if there is any reason a person being treated with a cancer vaccine should not get the influenza vaccine

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                  • rylee has created a new message board discussion

                    Does anyone know if there is any reason a person being treated with a cancer vaccine should not get the influenza vaccine

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                    • rylee has created a new message board discussion

                      Does anyone know if there is any reason why cancer patients taking cancer vaccine therapy should not take the flu vaccine?

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                      About rylee

                      Brain Cancer
                      After Treatment, Alternative Treatments, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Radiation

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