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schuls's Recent CancerCompass Activity

  • Schuls has replied to a post on the message board

    lease let me know how is your sister today? I am 52 with 3 children and the day I celebrated my 25th anniversary was when I had blood in the urine. I’m stage 4 urachal I had surgery on 2/9/19 and very scared and without a dedicated oncologist. I had read your post about your sister and how she bought a house and 2 year reoccurrence How is she and what happened after the 4 years ( reoccurrence every 2)

    June 12 at 11:17 AM view post
    • Schuls has created a new message board discussion

      If you have urachal cancer and have lived beyond 3 years please reply with what treatments you have had. I have been to the 5 major Drs in USA and told no treatmebtbother than the mixture md andrrson chemos everyone however prognosis still less than 3 years. Looking for hope

      June 11 at 12:45 PM view discussion
      • Schuls has replied to a post on the message board

        S

        June 05 at 12:25 AM view post
        • Schuls has replied to a post on the message board

          I have reached out to MD Anderson and they dont have you on the calling board.  IS there another way to reach you.

          May 14 at 9:58 PM view post
          • Schuls has created a new message board discussion

            Looking for anyone to give me direction. I was diagnosed 2/9/19 after cytoreduction surgery with HIPEC have not had any other chemo.  Told to be on close watch.  Spread to dome of bladder, ovaries, upper and lower omentum and in peritineal wall. Told that the peritoneal wall is a death sentence.  Looking for some hope and to learn what others have done to beeat the peritoneal wall

            May 14 at 9:53 PM view discussion
            • Schuls has replied to a post on the message board

              I am stage 4  and spread to peritoneal wall. Had Cytoreduction with HIPEC in Washington DC with Sugarbaker.  My PCI score is a 3 with cyto reduction of a 0    I am not getting any adjuvent thearphy  Please let me know your journey Thank you  Susan 

              May 10 at 9:55 PM view post
              • Schuls has replied to a post on the message board

                Linda. How are you doing today? I have been diagnosed with Stage 4 and similar to you. Please let me know what your journey looked like and how you are today. Susan

                May 10 at 9:03 PM view post
                • Schuls has created a new message board discussion

                  Any thoughts ?

                  May 10 at 6:11 PM view discussion
                  • Schuls has created a new message board discussion

                    Stage 4 from bladder, ovaries, upper lower omentum and peritoneal wall wall. Is there anyone that has tried anything and survived ? Please help. I’m in desperate search of a survivor of The peritoneal wall

                    May 08 at 9:39 PM view discussion
                    • Schuls has replied to a post on the message board

                      I have stage 4 urachal andocarcinoma with mucin I had cytoreduction with hipec in February of this year. Unsure if I should proceed with additional chemo seeing how I’m NER at this time. Any thoughts?

                      May 03 at 9:43 PM view post
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