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scootie45's Recent CancerCompass Activity

  • scootie45 has replied to a post on the message board

    Mary,   My husband was diagnoses with sinus cancer SNUC 5 1/2 yrs. ago.  He had 39 radiation treatments and 3 rounds of Cisplatin and 5FU.  He also developed terrible mouth sores from the treatments.  Tongue and mouth were like raw meat.  We used Ulcer Ease-recommended by rad. oncologist.  He went through bottles of it.  It is not cheap-about 8.50 per bottle-look around on the inte...

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    • scootie45 has replied to a post on the message board

      We are in Rockford Illinois.  I know there are a few more survivors out there, but sadly not too many.  Such a scary cancer- the more I read about it on line the worse it sounded.  This site is really the only place I found anything that sounded remotely hopeful. Kathy

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      • scootie45 has replied to a post on the message board

        My husband will be 5 year survivor in 2013! It is a "new normal" but as he says he is still vertical and the top side of the ground.

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        • scootie45 has replied to a post on the message board

          Hello-My husband was diagnosed with SNUC of (R) maxillary sinus 3 1/2yrs. ago.  He went through much of the same initial treatment as your sister-sinus infection-antibiotic, stronger antibiotic, dental problem-6 weeks to see the ENT-sinus infection-more antibiotics, etc.  He kept pushing the ENT and she finally ordered the CT scan which showed the tumor.  He was lucky-it had not spread and despite all ...

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          About scootie45

          Caregiver
          Head and Neck Cancer
          Cancer Treatments, Chemotherapy, Emotional Support, Radiation, Side Effects

          My husband Alan was diagnosed with SNUC-sinus nasal undifferentiated carcinoma of the (R) maxillary sinus in Jan. of 2008. He underwent 3 rounds of chemo with 5FU and Cisplatin as well as 39 IMRT treatments. He had bilateral pulmonary emboli from his PICC line and spent nearly a month in the hospital for that. Had horrible mouth sores, lost nearly 40# before he got his PEG tube-that is why we encourage anyone who is undergoing treatment for any head and neck cancer to get a PEG tube-you may not need it, but better to err on the side of caution. I have been an RN for 35 years, but worked mostly with cardiac patients, so cancer was a whole new world. I have found this site to be so helpful-you find people who are going through the same things you and your loved ones are. It has been 18 months since he completed treatment and scans are clean so far, but I still come here-we hope our experiances can be of help to others just starting this journey.

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