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sdurnell's Recent CancerCompass Activity

  • Sdurnell has replied to a post on the message board

    That's really too bad, as we are all here to help and get help.  I've noticed that in the last year or so many of my posts go to a moderator first, but usually they end up posted.  I suspect that it's due to flaws in the site.  Another one is that there is no spell check here. I also participate in the head and neck cancer forum on the Inspire site and find it much more reliable and professionally run...

    Monday at 1:22 AM view post
    • Sdurnell has replied to a post on the message board

      Rey, I have done extensive searches in the 8.5 years since I was first diagnosed, and I have not found a single case of head and neck cancer that was cured, or even just treated, with chemo alone.  They don't promise that because it doesn't happen. I am sorry that you don't feel that your 16 years have been worth the side effects, and that you weren't told there might be late radiation effects, but it sounds a...

      June 15 at 9:08 PM view post
      • Sdurnell has replied to a post on the message board

        Kak, I know that many people have had partially glossectomies (tongue removal) for cancer, and have had varying success with it.  Total removal is, I believe, done but not common. I agree with getting a second opinion if this has been recommended for you or someone you know. Susan

        June 15 at 8:57 PM view post
        • Sdurnell has replied to a post on the message board

          John, If the swelling is recent, I suggest that you contact your doctors about it.  Maybe start with your primary care and go from there if you need to.  There may be something they can suggest to help. And you can also get a referral to a speech therapist from your cancer center or ENT.  Even if this is not correctable such an expert may be able to help you use what you have left to improve your spe...

          June 15 at 8:54 PM view post
          • Sdurnell has replied to a post on the message board

            Bill, Thanks for your kind words and also for your advocacy here.  I just feel that I was blessed with good friends, both in real life and online, who helped me immeasurably while I was sick, so the least I can do is try to help others a bit. I do wonder, and worry a bit, when there is no activity here. Susan

            June 15 at 8:50 PM view post
            • Sdurnell has replied to a post on the message board

              Rey, So sorry you feel that you have been cheated by your doctors.  But really, there was then, and is even now, no way to know how a treatment might affect any one individual.  No way to predict what might happen to you or to me, even if we got the same treatment. But chemotherapy never cures this cancer by itself.  It needs surgery and/or radiation to get it all. When your treatment was advocated ...

              June 03 at 8:16 AM view post
              • Sdurnell has created a new message board discussion

                Here's a new trial I saw for folks who've not had successful treatment. https://www.tipifarnibtrials.com/signup/?SQF_SOURCE=HNCAenews&eType=EmailBlastContent&eId=476ed988-c7ce-42e4-8da3-44b69b071f18

                May 20 at 11:11 PM view discussion
                • Sdurnell has replied to a post on the message board

                  Danny, How are things going for you?  Have you seen an ENT yet? The only symptom I had was a swollen lymph node in my neck.  Sometimes more symptoms mean less disease (meaning not cancer). Susan

                  May 16 at 8:31 AM view post
                  • Sdurnell has commented on a news story

                    Lymphedema is a problem for those of us who've had neck dissections (removal of lymph glands) due to throat cancer as well.  Since it's in the neck, pressure garments are not an option.  This treatment sounds positive for breast cancer patients, and I hope that it might transfer that benefit if used for head and neck patients as well.

                    May 09 at 4:30 PM view news story
                    • Sdurnell has commented on a news story

                      I didn't have this problem with my radiation treatment, which did not need to be immediate, but I have had it with things that should be routine and have had medication problems because of it.  I can imagine what a nightmare it must be for cancer patients for whom time is of the essence, and for their doctors.

                      May 09 at 4:26 PM view news story
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                      About sdurnell

                      Patient
                      Head and Neck Cancer, Squamous Cell Cancer, Throat Cancer
                      Cancer Nutrition, Radiation

                      I have squamous cell cancer. A neck dissection showed one node positive (<3 cm.) and encapsulated. No primary has been found. I have no risk factors for this condition. Day after tomorrow I go in to have all my teeth pulled (my teeth are OK, but gums not so great). I will need five weeks of radiation, starting as soon as my mouth heals, and have been told not to lose any weight, even though I'm about 15 # overweight. Everyone is hoping I can avoid a feeding tube, but I'm not confident I can eat enough, especially without any teeth. I'd really like advice and support for this.

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