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sister58's Recent CancerCompass Activity

  • Sister58 has replied to a post on the message board

    Hi, Patty. My name is Beverly. I have been caregiver for my older brother off and on since 2001. His started with tonsillar cancer then. Surgery to remove his tonsils wasn't enough, and one year later he had massive doses of radiation. Since then he has had horrible side effects from the radiation. Vocal chord paralysis, brachial nerve plexopathy, which has caused his right arm to be paralyzed. In May of last ...

    October 05, 2018 view post
    • Sister58 has replied to a post on the message board

      James went to UT Southwestern, Zales Lipshy hospital, (which is closing soon, but a new one is already open, and preparing for patients.). Dr. Larry Myers did his surgery last May, and in April, this year. DR. Gordon did the reconstruction this year. I'm sorry, I can't remember Dr. Gordon's first name, but he works closely with Dr. Myers. I can't say enough about these doctors and their residents. The staff at t...

      June 04, 2018 view post
      • Sister58 has replied to a post on the message board

        Hi, Susan. You are so right about each case being different. My brother did well for about 12 years after massive doses of radiation. In about 2012 everything started to fall apart. His right arm began to weaken. His voice became very raspy, and he began to have trouble swallowing, and would aspirated quite often. Unfortunately, we knew nothing about dilation, and his doctor (who we have since dismissed) did no...

        June 04, 2018 view post
        • Sister58 has replied to a post on the message board

          My brother had massive radiation in 2001. Has already gone thru what you are going thru now, and more. If we can help with info let us know.

          June 01, 2018 view post
          • Sister58 has replied to a post on the message board

            Hi! cootercoco, I too am a caregiver to a survivor of head and neck cancer. My brother is 65 years old. Since 2001, he has had 4 major surgeries. Removal of tonsils due to tonsillar cancer in 2000. In 2001 a lump appeared on the right side of his neck. He underwent 31 days of very aggressive radiation treatment. For many years he was cancer free and doing very well. In about 2011 he began to notice numbness ...

            May 22, 2018 view post
            • Sister58 has replied to a post on the message board

              Everyone's experience s different. I am here to ask for prayers for my brother, who I have shared a lot about on this sight. He was just diagnosed with his 4th bout with this disease. We go to Dallas, Monday to find out how bad, and treatment options. He just had Laryngectomy, and his tongue removed last June. Please pray for him. As always, my prayers are with you all.

              March 15, 2018 view post
              • Sister58 has replied to a post on the message board

                Hey, Ron. My brother had tonsillar cancer in 2001 (?). He has had a couple of bouts since then. The most recent was last June. They removed his larynx and tongue. Good news is he healed really fast, got back on his feet, and gained his weight and strength back. About 6 years ago, again (?), he began to have sharp pain in his neck and shoulder on surgery side. Many, many Dr. visits later, a sports Dr. diagnose...

                February 01, 2018 view post
                • Sister58 has replied to a post on the message board

                  Dear Gerry, what a beautiful story. I am sorry you had to deal with this horrible disease, but your story gives hope to those who are going through it now. James, too is one of the long term survivors, from the era when radical treatment left long term, unknown effects. His right arm is paralyzed, he is on a feeding tube, has had a complete laryngectomy, and his tongue removed. He too is still plopping around thi...

                  November 29, 2017 view post
                  • Sister58 has replied to a post on the message board

                    Hi, Marmaduke; The fact that you are on this sight, seeking, and giving help, proves that you are amazing as well. I have come to realize that few of us end up staying on the path we built for ourselves in our younger days. We all reach those nasty crossroads and just have to trust God to lead us down the correct road. No matter what it is that interferes with our plans, we never go back " to how we once were". ...

                    November 29, 2017 view post
                    • Sister58 has replied to a post on the message board

                      Hi, Donna You couldn't be more correct. This is a horrible disease. I have been amazed watching my brother fight this since 01, and reading the messages of courage and encouragement on this sight. So many strong people, who are willing to share their experiences. I believe their experiences may give someone the courage to keep fighting. James also had the paralyzed vocal chord. A result of the radiation therap...

                      November 29, 2017 view post
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                      About sister58

                      Caregiver
                      Head and Neck Cancer
                      After Treatment, Cancer Nutrition, Diet, Emotional Support, Radiation

                      My brother James was diagnosed with tonsil cancer about 16 years ago. He did 31 days of intense radiation. He had 3rd degree burns when treatment ended. He went thru all the pain without a single complaint. He was cancer free until 2014 when it returned. Since then things have deteriorated. He has a paralyzed vocal chord. Brachial nerve damage which has caused paralysis of his right arm. His airway is closing, and he has very little voice left. He is fed via peg tube because of aspiration. But, he hangs in there, and I am very proud of him I have become his caregiver, his voice, and his right arm.

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