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starkwood's Message Board Messages

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On Jul 07, 2016 3:43 PM Cdphillips wrote:

On Jul 22, 2015 5:18 AM vangie wrote:

Never ever give up.  Get an attorney and let him fight it out!  Attorneys get 20% of what very you get and I would keep going.  Vietnam vets have a saying "deny, deny ,deny until you die.  I have new research if your interested that just came out this year.  See my facebook account.  Suzan Mobley Rhodes.  Contact me and ill help if I can

i am interested in new research of AO and RCC..  my husband has RCC.  diagnosed in 2009 and they removed his right kidney.  came back 3/14 and removed a third of left kidney and his left adrenal gland.   came back in 8/14 it is in his right adrenal, 2 places on his back and on a left rib.   i tried to get on your facebook page but no luck.   any help is appreciated.   He was in Okinawa 1/67 to 7/68 with a TDY to  Korea for 30 days 4/68 on DMZ

I spoke to a manager in the VA research department and spent about 30 minutes on the phone with him.  He was very open about what is happening within the VA to complete new research on Viet Vet health issues.  One was a very long-term study on cancer in veterans form that period both those who served in Vietnam vs. those who did not.  He says the results will be published within the next 12 months but was not sure exactly when they will be out.  He said it is the most extensive study of cancer in veterans that has ever been attempted.  Will keep you posted if I hear any news.  He promised to follow up with me when it is published.

RE: I seem to have lost hope.

by starkwood - June 27 at 3:18 PM

BROOKE!  i feel your pain, but bslueve you have a doctor problem.  TKIs are just one form of tgerapy fir kidney cancer.  There are now at least 13 different medical treatments approved by FDA for kidney cancer.  I can also tell you thaf I know people who are walking around after 20-28 years with Stage 4 RCC and are not ready to quit.  If one med foezn't work, insist on trying something else until you hit the right one.  Never quit.  He can survive well with proper treatment. PRAYERS HELP TOO!

Renal can er can start in tge kidney and spread to other organs and parts of the body.  Frequent sites are lungs, liver brain, and bone with less frequently thyroid, esophagus and others.  Might all be the same or different cancers.  Biopsy is only way to know for sure.

RE: Votrient

by starkwood - June 27 at 3:02 PM

I just started V today.  Dr. And literature says nothing about losing hair but does say most people's hair turns white but recovers if treatment is ended.  HOLD a bit on the wigs.  Give it a chance to work and kedp the faith.

On Jul 19, 2018 2:22 AM cmsnoris19 wrote:

On Jun 11, 2014 2:10 AM hupkovich wrote:

I am a vietnam vet(1969-1970) and was exposed to agent orange in CuChi. I developed renal cell cancer and applied for comp to the VA. I was denied. Has anyone else had this problem?

I am Viietnam Vet (01/66-12/66). Had kidney cancer spread to both lungs. I was a AF firefighter for 27 years. Exposed to CTC, CBM, Bromomethane, Halon 1211/1301. They told me in writing that it was not caused by agent orange, therefore, my claim was denied.

Do you recall working with a cleaner called "Trike", "Tri", TCE, or trichloroethylene.  It was commonly used around mechanics shops, gun shops, and electronics shops.  May well have been used on the trucks the FD used.  It is a known cause of kidney cancer and liver cancer and was declared prohibited by the military in the mid-80s because the risk of getting cancer from it was as much as 8 times higher than the general population.  Check into that.  Could be a ticket to winning your claim.

On Feb 27, 2016 4:12 PM ForDadRip wrote:

Went to the VA on 2/25/2016. Still not for sure what the title is of the two guys we met with as they do not have business cards, can not give out their phone numbers or emails, and could not hardly answer any of the questions i had.  Their most popular response was "we cant comment on that".  They did however time stamp the VCAA Notice Response that informs the VA we would like an extra 30 days to gather evidence.  I am hoping we dont have to go back to the VA again.  All in all it was not a good experience.  Nothing was done in a timely or efficient manner, the overall attitude of those we came in contact with was just short of piss poor and i dont believe they are there to to help but only to attempt to manage the veterans and their situations.  On 2/27/2016 we went down to the Veterans Service Commission.  I stumbled upon them on the internet and this is where we met out first Service Office.  She tried to convince us to drop our case and stop waisting our time for two reasons.  1)  "Your dad never went to the VA hospital" and 2) "When the veteran dies the claim dies".  She also stated "Knowing what i know, if i was you i would not waste any more of my time on this".  Not expecting this response we stuck to our guns and said this was something we wanted to carry on with.  She then brought in one of her fellow S.O. who has 8 years experience. She never once suggested we drop the case.  She told us exactly what she thought we should do and get and also informed us that we do not need to go back to the VA that we should contac the Veterans Service Commission for everything as they are advocates for veterans and their families.  Next i will be attempting to contact any and all doctors my father came into contact with to see if any of them believe that there is a connection between agent orange and RCC and if they will put their professional opinion on paper so that we can submit to the VA.  Thats it for now.  Stay tuned... 

AS long as someone files for substitution on an existing claim (spouse or child) before 12 months after the date of death, the claim remains active with the same start date.  There are a lot of next-to-worthless VSOs out there.  You have to pick through them to find a good one. Check, if you can, to see what his work specialty was in the service.  If he worked around mechanical or electronic equipment, he might have been exposed to TCE (trichloroethylene) which was used as a de-greaser and cleaner from before the Vietnam War until about mid-1980s when it was outlawed in the military because ----it causes kidney and liver cancer among other things.  If you can prove he worked with it, it is an easier case to make than Agent Orange as there are tons of studies linking it to serioius increases in risk of those cancers.  Worth a look at his record (the DD-214 will show his occupational specialties and you can look them up on the web.

On Feb 17, 2016 4:45 AM relliott28 wrote:

Jimmy,   I have a case pending and i am desperate to get a copy of the doctors opinion.   I am in the Philippines and a US doctor would care more weight.   May I kindly impose and ask that you send me copies of the documents and letters.   Block out whatever you think is too sensitive for me to see.   A Vietnam vet with one kidney and no support from VA.   Russ

Unfortunately, the VA plays dirty regarding nexus letters from doctors.  You cannot use a letter referring to a different patient other than yourself. You have to have a letter from a doctor who has personally reviewed all of your medical records in order for the letter to do any good.  You see, the VA does not recognize any evidence from one claim in deciding another claim.  That way, they are not bound by precedent and each veteran has to go to the trouble of finding the doctor that will give them such a letter.  Submitting someone else's letter will do zero good for your claim.

On Jun 17, 2014 4:16 AM HillbillyVet wrote:

On Jun 11, 2014 2:10 AM hupkovich wrote:

I am a vietnam vet(1969-1970) and was exposed to agent orange in CuChi. I developed renal cell cancer and applied for comp to the VA. I was denied. Has anyone else had this problem?

I'm a Marine Vietnam veteran 1969 and was diagnosed with Renal Cell Carcinoma a little over 2 years ago and had a partial nephrectomy at St Louis VA. I was with 3rd Amtracs and we operated in vacinity of An Hoa, Dodge City, Go Noi Island and Arizona Territory out SW of Danang. We have a Facebook group for Agent Orange and Kidney Cancer that you should hook up with.

https://www.facebook.com/groups/AGENTORANGE1/ "" target="_blank" rel="nofollow">https://www.facebook.com/groups/AGENTORANGE1/ " target="_blank" rel="nofollow">https://www.facebook.com/groups/AGENTORANGE1/

I am also a member of that group, and I'd suggest that if you have worked in mechanical or electronics repair positions you may well have been exposed to TCE (trichloroethylene) which has been documented to cause kidney and liver cancer at as high as 8 times the rate of the general population not so exposed.  It might well be a back-up for your claim because at the present time, only about 8 percent of RCC claims are approved because most doctors won't give you a letter for it.  Mine, however, gave me a letter in less than a week after reading the five studies I gave him about TCE.  No arguments.  Waiting for results of claim as we speak.

On Aug 03, 2015 9:47 PM andrealuscott wrote:

Wow!  My dad served in the USMC in Vietnam, was first diagnosed with Colon Cancer at the age of 30.  A pie shaped wedge of his colon was removed and he remained cancer free for close to 20 years.  Then he was diagnosed with Renal Cell Carcinoma.  He battled this disease for about 5 years, but he lost his battle at the age of 54 years old to RCC.  He claimed from day one that he KNEW it was due to his exposure to Agent Orange.  He reached out to his local VA Hospital back in the late 90's and they said that Renal Cell Carcinoma was not a cancer listed.  I'm guessing that has changed.  With him being deceased, is it even possible to pursue.  Boy, he'd be smiling down from heaven saying, "See!  I told you so!!!"  This seems to be a pretty common cancer for those exposed to Agent Orange.  I'd love your suggestions/recommendations. 

Sorry, for your loss.  You can still file a claim for survivor benefits based on his medical history, but it would not be retroactive. Kidney cancer, however, is still not recognized as a disease caused by AO because virtually nobody is doing any research to determine if there is a connection.  The study done in Shreveport was a small study but the VA never followed up even though in the period of 17 years (2000-2017) the VA diagnosed or treated over 100,000 cases of kidney cancer among veterans both from the Vietnam Era and after that time.  
All that being said, depending on his occupational specialty, your dad may have been exposed to TCE (trichloroethylene) which was used in a multitude of jobs in all branches of the service until about the mid-  1980s when it was banned from the military because it was found to be a very strong cancer causing chemical (particularly effecting in causing...kidney and liver cancer).  Contact the VA and see if you can still file a claim for survivor benefits.  If so, and he may have used the stuff, it might be worth a try.  Condolences and Best Wishes  

I worked in military electronics for just three years but was expised to daily fumes and skjn contact with TCE (trichloroethylene)  which is a clraner/degreaser. that may well have been used to clean mwtal before welding it.  Suggest you look into that as well.  My oncologist says it was more likely than not the cause kf my kidney cancer.  Studies show a major increase in risk of kidney and liver cancer over that ofpeople never exposed.  It was ckommonly used in a number of industries during the 50sthrough 80s. when it began to be questioned as a cause of cancer. Worth looking into.

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