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steve77's Recent CancerCompass Activity

  • steve77 has replied to a post on the message board

    Hi Oscar, I am now close to 6 years post treatment for stage 4 throat cancer (35 days radiation and 2 cycles of chemo).  While my salivary glands never really recovered, I am earting virtually everything without difficulty, except spicy food. I know when I need to drink water to help the swallowing, and I don't even think much about it anymore. I can eat a handful of chips or dry crackers and remember a time wh...

    June 19, 2015 view post
    • steve77 has replied to a post on the message board

      Oscar, Clearly, you need a medical opinion on this, so what I offer is just my experience... The primary pain I had was soreness in my throat; swallowing was very painful, and that is why I used the feeding tube, even for meds. Even sipping water was painful when I swallowed, besides the unpleasantness of the texture of food.  I did have some pain on the right side of my neck, and this was a lingering mild pain...

      December 27, 2014 view post
      • steve77 has replied to a post on the message board

        HI. I am about 5 years post stage 4 tonsil cancer, had 35 rounds of radiation, and chemo, and as some others have mentioned, I have about 60% salivary function compared to my precancer days.  It's been fairly stable at this level for several years, but I would say that my ability to function with this level of saliva has improved in spite of not making further gains... thus, I can eat a handful of crackers or pr...

        December 26, 2014 view post
        • steve77 has replied to a post on the message board

          Hey Oscar 1 - I assume you mean 8 weeks after you've completed radiation. I remember that the very worst I felt was the first 2 weeks after radiation ended. Even at 8 weeks out... I had to take it slowly when walking up one flight of stairs to my office, and was drained by the exertion. Then, over the next months, things did slowly got better, but I kept the feeding tube for around four months after treatment.  ...

          December 26, 2014 view post
          • steve77 has replied to a post on the message board

            Worth it! I was diagnosed with Stage 4 tonsil cancer that had spread to my lymph nodes on the right side of my neck in June 2009. I had 35 days of radiation and 2 cycles of chemo - I was too beat up to receive the third cycle. I had a feeding tube for 6 months, my taste buds, saliva, and thyroid were zapped. I am now on a  thyroid pill (no big deal), my taste is virtually completely restored (I can't eat s...

            December 17, 2014 view post
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            About steve77

            Patient
            Head and Neck Cancer, Throat Cancer
            After Treatment, Emotional Support, Lifestyle, Radiation, Side Effects, Spiritual Support

            I am a five year survivor (Oct 2009-2014) of stage 4 tonsil cancer. I had 35 days radiation and two rounds of cisplatin treatment in 2009. Still dealing with some reminders (salivary issues, tinnitus, hypothyroid), but grateful, grateful, grateful.

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