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steveb50's Recent CancerCompass Activity

  • steveb50 has replied to a post on the message board

    My husband had frequent bouts of diarrhea after esophagectomy and tube feeding. Try drinking a small amount of metamucil.

    October 05, 2018 view post
    • steveb50 has replied to a post on the message board

      Hi Karen, My husband is a 32 yr HL survivor. He has seen a couple of docs through the Farber survivor clinic  it's good to visit at least once to give you information on potential issues. Steve has seen Dr. Nohria cardiologist and Jean Mulder endocrinologist there 

      June 23, 2017 view post
      • steveb50 has replied to a post on the message board

        Get a second opinion at a major teaching hospital. Ask everyone you come in contact with who is the best surgeon to do an esophagectomy. Good luck.

        June 23, 2017 view post
        • steveb50 has replied to a post on the message board

          I would make an appointment with a gastroenterologist.

          June 21, 2017 view post
          • steveb50 has replied to a post on the message board

            I had forgot about this post from  September 2015. Its kinda crazy that it has shown up in my email today. We are back in the same boat again. Immunotherapy stopped the growth for about 16 months. Boy have we been lucky. we are hoping the docs at Dana Farber have something else to offer. Hoping! Tracy b.

            April 30, 2017 view post
            • steveb50 has replied to a post on the message board

              My husband had mantle radiation in 1985 and was treated with EVA in 1992 for recurrent Hodgkins disease. He has hypothyroidism, radiation fibrosis in the neck, shoulder, upper back and several occluded arteries but the biggest challenge has been esophageal cancer. Beware of esophageal cancer! He s treated at Dana Farber cancer inst and Brigham and Womens hosp in Boston. They are very aware of the long term effects fr...

              March 13, 2017 view post
              • steveb50 has replied to a post on the message board

                I neglected to say he is 5yrs post op. we think the vagus nerve was impacted during the surgery causing the paralyzed vocal chord. 

                January 21, 2017 view post
                • steveb50 has replied to a post on the message board

                  How is your voice quality?  the cough could be a  nasal drip, caused from aspiration, a vocal chord issue or reflux.  try some antihistamine to see if improves.  my husband has a paralyzed vocal chord which causes a small amount of aspiration which leads to his having a constant cough. he has had two implants put in and will probably need a another. 

                  January 21, 2017 view post
                  • steveb50 has replied to a post on the message board

                    I'm sorry to hear that your dad is not feeling well.  This cancer is so frustrating and sad for all involved.  Yes, December is the 14th mos. Steve has received pembrolizumab without progression.  Last I knew there were 6/30 who were progression free at the year mark in this particular trial. The 30 original participants were split into two groups.  Steve is the only one from his group with stabl...

                    December 22, 2016 view post
                    • steveb50 has replied to a post on the message board

                      According to my research and experience, about 20% of patients are having a partial response and have progression free survival at the year mark so far.  My husband has not had any eating issues and has experienced minor fatigue. I suggest you call your provider if you have concerns especially about the lack of appetite. Was your husband experiencing these symptoms before the infusion? 

                      December 22, 2016 view post
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