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steveb50's Message Board Messages

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My husband had frequent bouts of diarrhea after esophagectomy and tube feeding.

Try drinking a small amount of metamucil.

RE: Life after an Esophagectomy

by steveb50 - September 21, 2018

Oh darn...I hate when that happens.

I'll write again tomorrow. ??

RE: Life after an Esophagectomy

by steveb50 - September 19, 2018

Hello dear Trudy. How are you holding up?

I'm trudging along at a snail's pace these days.

I've been dealing with some chronic pain which is complicating things.

I know it could be much worse so I persevere despite my limitations.

Hope you are doing as well as possible.

Love,

Tracy

RE: Life after an Esophagectomy

by steveb50 - September 18, 2018

Good luck to you and your boyfriend Katie.

There is an esophageal cancer caregiver FB page...you can find info and support there as well.

Best,

Tracy B.

On Apr 25, 2018 7:59 PM trudy103 wrote:

On Apr 25, 2018 4:59 PM steveb50 wrote:

If you look back years on this thread...there are people who swear by eating popcorn in the early evening to stave off reflux at night.

I don't imagine it had butter...maybe jysj a little salt.

Tracy,

I'm cleaning up all of my "loose ends" before I have surgery tomorrow A.M. I've been inundated with everything, including having to put a new roof on the house. My roof is a Spanish tile roof, and believe it or not, the estimate came in at almost $80K. Insurance called last night, and they said that they are approving a replacement roof. Thank heavens that I'm only having to pay for 1 percent of value of my home (less land). It just never ends.

How are you doing? I'm struggling to keep up with everything; and although not looking forward to another surgery, I'm looking forward to getting this horrible protrusion behind me! I saw the CT scan last week and it involves my large intestine, small intestine and a part of my stomach. It's huge, with the only thing holding everything in place is my skin. No fascia, no adipose tissue only the skin. It's uncomfortable--sometimes painful but I'm doing okay.

Hopefully you guys are getting the warm weather soon. I understand that it will be 80 degrees on Thursday. You need a weather break!

Great to see you here. Got to run--lots to do.

Love,

Trudy

Just popped in to check on you... mostly. I'm overcome with emotion when I think about all you've had to deal with dear Trudy.

You are in my prayers today.

Love, Tracy

If you look back years on this thread...there are people who swear by eating popcorn in the early evening to stave off reflux at night.

I don't imagine it had butter...maybe jysj a little salt.

Hi Karen,

My husband is a 32 yr HL survivor. He has seen a couple of docs through the Farber survivor clinic  it's good to visit at least once to give you information on potential issues. Steve has seen Dr. Nohria cardiologist and Jean Mulder endocrinologist there 

RE: T3N3

by steveb50 - June 23, 2017

Get a second opinion at a major teaching hospital. Ask everyone you come in contact with who is the best surgeon to do an esophagectomy.

Good luck.

I would make an appointment with a gastroenterologist.

I observed my husband pushing the boundaries a little bit every day to find his new normal. He returned to a desk job at about 7 weeks for about 30 hrs per week initially. Walk as much as you can every day. Push yourself a bit. Have you considered home pt. Your Dr can order it. Start getting out into the world a little bit as often as you can. Good luck with your recovery.

Tracy b. ( Wife of Steve b)

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