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stevem57's Recent CancerCompass Activity

  • stevem57 has replied to a post on the message board

    Hang in there, sounds like you're making progress.

    September 11 at 6:07 PM view post
    • stevem57 has replied to a post on the message board

      You're OK, those numbers don't sound bad at all at least fo MM or MGUS. Try to relax until your appointment, I know it's scary.

      September 05 at 7:57 PM view post
      • stevem57 has replied to a post on the message board

        Welcome to MGUS, it just means you'll have to keep an eye on it now. It may or may not become MM. I have had MGUS and now smoldering MM for over 10 years and I'm still going. You'll be OK.

        March 05 at 7:58 PM view post
        • stevem57 has replied to a post on the message board

          Hi Carly, There is a MM without an m-spike, I believe the urine analysis is the way you test for it. Have you done a 24 hour urine test? Hang in there, I have had smoldering myeloma for 10 years and my pain is much better now. Things can improve, don't be scared just make sure to get answers.

          March 05 at 7:38 PM view post
          • stevem57 has replied to a post on the message board

            Keep after the doctors and don't worry. Stress does not help, harder to do than say, I know. Did anyone say you had myeloma?

            June 22, 2015 view post
            • stevem57 has replied to a post on the message board

              thanks so much

              June 12, 2015 view post
              • stevem57 has created a new message board discussion

                Hello, Been a while since I was here. I started with MGUS 7 years ago then moved to smoldering and now the onc says it's time for ASCT. I am interested in recommendations on the best place for a stem cell transplant. I live in Kansas, has anyone used CTCA in Tulsa? Thanks in advance

                June 09, 2015 view discussion
                • stevem57 has replied to a post on the message board

                  Yes, it's a lonely life. You don't feel well. It just gets tiring. I do have a supportive family and church that help me through. May I put you on our prayer list? I hate that lonely feeling. Steve

                  view post
                  • stevem57 has replied to a post on the message board

                    It is not the site it used to be. People were chased off if they were deemed as not sick enough to be here. That sent me away as well. I drop by for a look once in a while but it's quiet and unwelcoming here.

                    view post
                    • stevem57 has replied to a post on the message board

                      Worry wo't help anything :) wait and see what the results are. A single lesion can usually be handled with a few shots of radiation. There are many expert folks here who can fill you in.

                      view post
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                      About stevem57

                      Patient
                      Multiple Myeloma
                      Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Spiritual Support

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