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stevem57's Recent CancerCompass Activity

  • stevem57 has replied to a post on the message board

    Welcome to MGUS, it just means you'll have to keep an eye on it now. It may or may not become MM. I have had MGUS and now smoldering MM for over 10 years and I'm still going. You'll be OK.

    March 05 at 7:58 PM view post
    • stevem57 has replied to a post on the message board

      Hi Carly, There is a MM without an m-spike, I believe the urine analysis is the way you test for it. Have you done a 24 hour urine test? Hang in there, I have had smoldering myeloma for 10 years and my pain is much better now. Things can improve, don't be scared just make sure to get answers.

      March 05 at 7:38 PM view post
      • stevem57 has replied to a post on the message board

        Keep after the doctors and don't worry. Stress does not help, harder to do than say, I know. Did anyone say you had myeloma?

        June 22, 2015 view post
        • stevem57 has replied to a post on the message board

          thanks so much

          June 12, 2015 view post
          • stevem57 has created a new message board discussion

            Hello, Been a while since I was here. I started with MGUS 7 years ago then moved to smoldering and now the onc says it's time for ASCT. I am interested in recommendations on the best place for a stem cell transplant. I live in Kansas, has anyone used CTCA in Tulsa? Thanks in advance

            June 09, 2015 view discussion
            • stevem57 has replied to a post on the message board

              Yes, it's a lonely life. You don't feel well. It just gets tiring. I do have a supportive family and church that help me through. May I put you on our prayer list? I hate that lonely feeling. Steve

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              • stevem57 has replied to a post on the message board

                It is not the site it used to be. People were chased off if they were deemed as not sick enough to be here. That sent me away as well. I drop by for a look once in a while but it's quiet and unwelcoming here.

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                • stevem57 has replied to a post on the message board

                  Worry wo't help anything :) wait and see what the results are. A single lesion can usually be handled with a few shots of radiation. There are many expert folks here who can fill you in.

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                  • stevem57 has replied to a post on the message board

                    Thanks Billy, I appreciate it.

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                    • stevem57 has replied to a post on the message board

                      Is 38 signifigant?

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                      About stevem57

                      Patient
                      Multiple Myeloma
                      Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Spiritual Support

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