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super01mom's Recent CancerCompass Activity

  • Super01Mom has replied to a post on the message board

    Hello, I was diagnosed with  T31NM0 June 2008, my cancer was very near the anus as well, I had a LAR done thru the abdomen with a colostomy. My take down was performed Oct. 2011, and since then I have experienced bowel incotinence. I had tests done recently and it showed severe nerve damage and nearly no muscle control around the spincter muscle. Would the damage of happened if they went thru the anus inst...

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    • Super01Mom has replied to a post on the message board

      For my vomitting I was given phenegran and for the diarrhea I was given lomotil, nothing else worked for either. I would ask the doctor for the prescription. Make sure you are getting plenty of fluids down as much as you can tolerate. Good luck! Sheryl

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      • Super01Mom has replied to a post on the message board

        I have had a Picc Line on more than one occasion. My experience with Picc Lines is it wasn't much worse than getting an IV. I had it placed in my arm above the elbow, they used a topical to numb the area, it was done by a nurse and I recommend it to anyone who is a hard stick or is going to have to be stuck several times, I was able to have my blood draws done thru the picc line, all antibiotics and it is far better ...

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        • Super01Mom has replied to a post on the message board

          Fran, Sorry you are having such a hard time with the leaking. You are right everyone's body type is different and believe me I know. When I had a broken leg I just wanted to shower and well you know you can't shower with a cast on, so I found a product that you put over the cast to prevent it from getting wet, so I thought I would look into a product to put over the bag. I did find a product with Hollister, that you...

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          • Super01Mom has replied to a post on the message board

            First off I am so sorry you were diagnosed with cancer, the word cancer is so scary and most people associate it with death. Do not give up hope. Have you tried calling the doctors office and talking directly to the doctor? I can't imagine a doctor giving you a diagnois of cancer and then turning his or her back from you. I know when I did not biopsy they do not stage your cancer at that point, usually have to go thr...

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            • Super01Mom has replied to a post on the message board

              Like everybody else already said you must have a colonostomy to rule out polys, colon or rectal cancer, infection, it could be all kinds of things....can't believe they haven't already given you the tests with the syptoms you are discribing. My colonostomy saved my life, and because of my early detection of cancer it saved my younger brother's life as well. This is nothing to play around with, call your doctor immedi...

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              • Super01Mom has replied to a post on the message board

                It's too bad you can't get in Austrlia, here in the states it varies from state to state. I live in California and it is legal to have a medical marijuana card here, although with all the regulations and rules once you do find a good supplier they are closed down because they didn't dot all their I's and cross their T's. I have never thought of using the oil, we use the oil to make a base  to make ateables, such...

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                • Super01Mom has replied to a post on the message board

                  I wish you all well, I hope your experience isn't as bad as mine was with leaking bags, bags that would fall off, skin rashes, I even got a staff infection around the stoma, that I got courtesy of Balboa Military Hospital. I tried all kinds of diets to try to ease the diarrhea issues, no dairy and gluten- free helped some, immodium wouldn't do anything for me took the max per day, switched to lomotil a prescribed med...

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                  • Super01Mom has replied to a post on the message board

                    Fran, I will look you up on facebook, I am on there too. Good luck! Sheryl

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                    • Super01Mom has replied to a post on the message board

                      Fran, I had to use the paste by Hollister to help the seal stay in place, however this did not work on every occasion. I had severe diarrhea, it would make the seal very hard to stay in place because of the leaking, and my colostomy was on the left of my belly button, not even an inch away from belly button, making it nearly impossible to keep the darn thing sealed. My specialist I have now said it should of never b...

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                      About super01mom

                      Patient
                      Colon Cancer

                      I was diagnosed with colon cancer in April 2008. My first surgery the LAR was performed June 20, 2008, where the cancer was removed. When I awoke 48 hours later, my surgery turned into 12 hours not the 4-5 hours that was promised. Apparently there were complications, and they lost me at least once during the procedure, although my medical records that I asked for did not indicate any complications and half was either missing or blacked out, yes how can they black out your medical records, first red flag. Anyway...10 days post op an intern came into my room performed an unauthorized procedure and well all hell came loose, literally, my stomoach pretty much blew up and I developed a rectal/vaginal fistula within a few hours I was rushed into surgery, they couldn't fix the fistula because the skin was not viable, they would have to leave it for further surgery down the road. They did have to give me a colostomy at the time, because the LAR fell apart and they had to remove more of my colon. I thought this was the end of it, but 7 days later back to the operating table for another surgery, it came apart again...My recovery was long nearly 5 weeks in the hospital, came home to full time nursing care, physical therapy because the first LAR, on the table for 12 hours caused nerve damage to my right side from my foot to my hip I couldn't feel a thing or more my leg. It took the hospital 4 days to send a neurologist to take a look at me, I had a compression nerve damage, it was too late to fix the damage had already been done, because they waited 4 days. I pleaded for them to call someone down but they didn't seem to think it was a big deal. I think not being able to feel your leg or move it is a big deal. So now I have right peripheral nerve damage, a rectal/vaginal fistula, and months later I found out the surgeon cut off the blood supply to the sigmoid colon, basically killing it, so the reason for the severe diarrhea, I forgot to mention that is due to the blood supply being cut off , and now it maybe nearly impossible to reattach me and get rid of the colostomy. I thought cancer was bad, the amount of damage to me now is much worse than the cancer was. I am currently in a lawsuit, which the hospital now wants to settle out of court, we'll see how that goes...but I am cancer-free thank God and still alive and kicking. I am going to be going to UCLA soon, within the next few weeks to get repair surgery, they are suppose to be the best surgeons around so hopefully I can get some relief finally. That is what I am praying for a miracle for sure. Sorry about the novel, had a lot to say. I am lucky though got a great husband, three great kids and tons of friends that support me. I am blessed.

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