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svensklakare's Recent CancerCompass Activity

  • Svensklakare has replied to a post on the message board

    Not much to say except, yes I'm 4 years out 2013 as well, and have almost no related health problems. Only platelets a bit lower than before (compliments of Temodar) and short term memory not as good, also react to stress differently now. Otherwise I'm full of vigor, energy and frequent the gym as often as humanly possible, that's 6 mornings a week right now. Lucky to have husband leave. Mine is an ice box, but doe...

    September 20, 2017 view post
    • Svensklakare has replied to a post on the message board

      Jody, 16 years, that's awesome. I'm only 3 1/2 years out, but have no sequels to talk about no headaches, no fatigue, no aches or pains. But yes I'm a bit sensitive to bright lights, but attribute it to having LASIK on both eyes. It really messed up my eyes, I had it in 1996. I'd do anything to undo that surgery. Well, I'm at the gym 1-2 hours each morning and eat tons of fresh green, lots of berries. I cut out mo...

      January 03, 2017 view post
      • Svensklakare has replied to a post on the message board

        It's funny you mention Frankinsense, another name is Boswellia serrata, a tree resin from India. I take it as an anti-inflammatory at a high dose of 500mg three times a day. It's great stuff, I also take high dose Ginger and Turmeric also with meals three times a day. I'm doing it for inflammation both for brain health and joint issues. Also high dose fish oil with meals. Works wonders! I get all of these on Amazon a...

        November 09, 2016 view post
        • Svensklakare has replied to a post on the message board

          Hi there Beach1, That's so NOT TRUE!!! For what it's worth I'm now over 3 years out from my AA3, tumor (9 ounces) removed Sept 2013. I'm doing great, now down to about 2 MRIs a year. Lots of energy. I doubt it will come back. I'm at the gym daily and started working as a doctor again. But there are longer term survivors out there. Imerman Angels set me up with a woman who lives in S or N Dakota and was 12 year...

          November 08, 2016 view post
          • Svensklakare has replied to a post on the message board

            Yes, as a survivor I can tell you, it was harder on my husband than me. He felt also helpless, and had to not only do his job, but take over mine too, take care of the kids, bills, go to medical visits etc. So stressful terrifying and hard for him. For me as a patient, I had no pain, so didn't suffer...if I died,,,,then I died. But he would be left with the kids house job mortgage. That's a lot. Beng a caregiver is w...

            February 02, 2016 view post
            • Svensklakare has replied to a post on the message board

              Dear gefell19, First, so sorry to hear about your girlfriend. Then I guess I'm curious if she's at a good top brain tumor center...since occasionally I've heard stories where the patient was told it was inoperable, but then some skilled experienced surgeon elsewhere could do it. Just a thought. With brain tumors, you really need to get second third fourth opinions. With my brain tumor we went to at least 3 places ...

              February 01, 2016 view post
              • Svensklakare has replied to a post on the message board

                Re:NovoCure...I used it for 7 months about 2 years ago. It was great, a bit of work, but absolutely no side effects. Once you learn to change the arrays every 2 days, it becomes easy. I highly RECOMMEND It! And now 2 1/2 years later, I'm still here, feeling well and healthy. I'm in Europe on a trip right now, so am posting this from Sweden. Be well and best of health to all of you out there! With LOVE and PEACE, D...

                February 01, 2016 view post
                • Svensklakare has replied to a post on the message board

                  Hello, I had an Anaplastic Astrocytoma grade 3, Right Frontal, removed in Sept 2013. It was a huge tumor (size of an egg) and got max radiation around the tumor cavity using IMRT for 6 weeks, also did concurrent Temodar for 3 of those weeks. At UCLA one of the MDs wants me to stay on chemo for 12 cycles. I didn't want to and as it turned out my platelets dropped drastically with just those 3 weeks of Temodar. I el...

                  October 28, 2015 view post
                  • Svensklakare has replied to a post on the message board

                    Basal cell! We had a contractor over to work on a door and he had a pearly reddish lesion on his face. Even though I try to mind my own business these days, I pointed it out to him. Sure enough when he came back that's exactly what it was. He was grateful. Well hey I'm a doctor, so I know how these things look. These kinds of cancer are not as dangerous as melanomas, but can get quite invasive if left to grow. ...

                    September 10, 2014 view post
                    • Svensklakare has replied to a post on the message board

                      GREAT ADVICE!! We live in a very sunny part of Southern California, we are pale and I'm riddled with moles. Yes melanoma in my family. Recently had a mole removed on my back, that I was concerned about. It was a Dysplastic Nevus (mole) with mild atypia. Then my husband (even paler than me) had a small mole on his arm that all of a sudden started bleeding. I sent him to my Dermattologist and he ended up with the ex...

                      September 10, 2014 view post
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                      About svensklakare

                      Doctor, Patient, Researcher
                      Brain Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Biotherapy, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments

                      Just diagnosed with Anaplastic Astrocytoma grade 3 Sept 2013. Surgery with craniotomy at UCLA, they had a really good resection and felt they got most it. Completed radiation for 6 weeks and took some Temodar concurrent for 3 weeks. Really didn't want to do either initially....but was eventually talked into it. Have 3 young boys so didnt want to chance it, knowing that the radiation, awful as it is, does kill those cancer cells. Being a doctor (MD) it was a really hard decision, losing more IQ points is not good, lost enough already between my initial seizures and the huge surgery. I'm hoping from here to stay positive and do alternatives like Novocure. I really absolutely despise chemo. I love nutrition, especially raw vegan food but have a hard time believing that is a cure once you already have those cancer cells growing. Guided imagery I think definetely helps the immune system. I'm also interested in finding out more about vaccine and all other options. I love health and medicine and welcome any medical questions or comments. I am convinced there will be a cure for AA 3 and GBM at some point, just hope it's as soon as possible.
                      Update: Well, it's been almost a year since my craniotomy and I must say I'm doing and feeling extremely well. My head is clearer, my thinking sharper and I'm getting good at multitasking again, the brain fatigue seems almost totally gone, but took almost a full year to improve. I've been active at the gym, go dancing when I can and read a lot, mostly science. All my MRIs are clear so far. So far so good, I'm extremely fortunate!!!! I've taken a summer NovoCure break, but will probably start up again, just a few more months, sort of as an insurance policy. They are also starting up a clinical trial at UCLA for IDH-1, a common tumor marker that I have. That med may be out on the market in like 5+ years, so check if you have it.
                      Update Dec 2015: yet another clear MRI, next one in June 2016. I'm doing great, no issues, planning to get back to work next Sept after I take my specialty medical board exam, I study every day now. Also at gym at least 6 days/wk.

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