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swdesertlover's Message Board Messages

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Thank you all so much for the nice comments.  I am truly grateful for the time Tommy was given and that we were able to do so much during that time.  Today was a very tough day, but I do take a lot of comfort knowing that his passing was very peaceful.  

Keeping everyone else here in my prayers.  Keep fighting the good fight.

Cindy

My best friend and husband has been battling pancreatic cancer since September 2009, but he became ill quite suddenly on Thursday.  After getting him to the emergency room we learned that what had started out as a minor cold had very quickly turned to pneumonia and he was becoming septic.  His wonderful oncologist and a team of doctors and nurses fought to get his condition under control, but despite everything they tried Tommy passed away peacefully a few minutes before noon on Friday.  I am just numb as I prepare for his funeral today.  My house is full of well meaning family and friends, but it still feels so empty.    

Every time Tommy and I would leave each other, we would always say "I love you.  I'll see you later."  I was told that I would have some private time with him today to say my final good-bye, but this I will not do.  Instead, I will tell him "I love you.  I'll see you later."

The only effect he's ever had from the lung nodules is a minor cough.  It's not bad at all and has stayed about the same.  He continues to do well and had a six month break from the chemo.  He just started back the first week of February. 

Cindy

Keeping you in my thoughts and prayers that everything goes well and for your complete recovery.

Cindy

My husband has been on enzymes ever since his Whipple.  He lost a lot of weight in the beginning but his doctor then prescribed Pancrease for him.  He takes one with every meal and snack and he immediately began putting weight back on. Please check with your grandmother's doctor about this.

Cindy

Thanks for all of your thoughts on this.  I have not spoken with his doctor, but have talked with her assistant to just let her know a few things that are going on.  I'm hoping she'll pass this on to his doctor before his next appointment in a little over a week.  My concern is that he may not be getting the proper treatment if he's not being completely honest with them about how he's feeling.  We'll see what happens at his next appt.

Thank you all,

Cindy

 

Thanks Oncrx.  I agree; I've seen things change fast for others and that's a lot of my concern.  I'm going to try to call tomorrow and talk to his doctor.

Cindy

Thanks.  I'm going to try to call her tomorrow.    

Cindy

Thanks.  He goes back for his next treatment in about a week, but I'm thinking about telephoning his oncologist before that appointment and letting her know what's really going on with him.  He is not always honest with her, even though I keep telling him he has to tell her everything so she can treat him appropriately.  I go with him to all of his appointments and sometimes speak up when he's less than honest, but it seems to irritate him.  I hate to do things behind his back, but I think a telephone call to her without him knowing is my best option at this point.

Cindy

I’m so worried about what I’m seeing happen to my husband.  He was diagnosed on September 10, 2009 with stage IIB pc.  He had a Whipple followed by six months of chemo and radiation.  Scans all clean until the end of 2010 when he began to develop a cough and spots appeared in both of his lungs.  A needle biopsy confirmed mets to the lungs.  He’s been on Folfirinox treatments since and has been doing pretty well.  His cough went away shortly after going back on chemo and his last scan showed the tumors had shrunk some.  My concern now is that his dry cough started coming back in February, but he continues to tell his doctor that he thinks it’s allergies (he’s never had allergies before, he has no other symptoms of allergies and allergy medicine has not helped at all).  In addition, he is now sleeping a lot.  He sleeps about 10 to 12 hours a night and then naps all day long in his recliner.  It’s almost impossible for him to stay awake when he’s sitting down.  When he’s up and outside he seems to feel well and is still fairly active, although I’ve also noticed that any physical exertion leaves him breathing hard and usually heading back indoors to rest.  He is still eating pretty well, although not as much as he used to, and his weight is slowly creeping down.  His next scan will be sometime around the end of June.  I’m confused because his last scan seemed to be such good news, but what I’m actually witnessing is very concerning.  If anyone has any thoughts on this, I would really appreciate it.

Cindy

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About swdesertlover

Caregiver
Pancreatic Cancer
Emotional Support, Cancer Treatments

My husband of 17 years is also my best friend. Tommy was diagnosed with Stage IIB pancreatic cancer on September 10, 2009 and had a Whipple on September 14th. He received chemo and radiation treatments and was doing well, then he began to develop a cough and a scan in December 2010 showed small nodules in both of his lungs. A needle biopsy was performed and it confirmed that the cancer had spread to his lungs. He's now been on Folfirinox treatments since June 2011. We're in this fight to win and Tommy remains positive and is continuing to enjoy his life. We've learned to appreciate every day that we have together and love to spend time with our family and friends.

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