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tammym's Recent CancerCompass Activity

  • Tammym has replied to a post on the message board

    Thanks!

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    • Tammym has replied to a post on the message board

      My deductible will be higher, but if it means finding a knowledgable physician and surgeon, I am willing to pay...........

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      • Tammym has replied to a post on the message board

        Do you have a name of someone?

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        • Tammym has replied to a post on the message board

          Thank you both for the information. I am going to see a surgeon on Jan 14th. I will start compiling my questions. Any additional insight is welcomed! Again, thank you both.

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          • Tammym has replied to a post on the message board

            I understand everything you are saying. My biggest challenge is finding an endocrinologist that knows how to treat me. I have to remind my endo that I had MTC. I am in search for a new endocrinologist. Its his last time telling me that it's been 20 years, so he's almost positive that it won't come back. I was always told by my surgeon from Savannah that if a nodule is found, have it removed. Survival rate for MT...

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            • Tammym has replied to a post on the message board

              Did you have MTC?

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              • Tammym has replied to a post on the message board

                I will, thanks.

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                • Tammym has replied to a post on the message board

                  It's always been part of my routine blood work. It's always been within normal range and never mentioned.

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                  • Tammym has replied to a post on the message board

                    Thank you for the link. My calcitonin level is within range, but my vitamin D levels are low. My PCP has placed me on 50,000 units of vitamin D twice a week, plus a multi- vitamin. My TSH levels, thyroglobulin levels and anion gap levels are out of whack. A few months ago, my PTH levels were high. I am seeking a second opinion! I am not sure what needs to be done, but watching and waiting doesn't seem right. O...

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                    • Tammym has created a new message board discussion

                      I was told a few months ago, that I have some residual thyroid tissue with a nodule measuring .4 mm. Nine months later that nodule is 1.4 cm. I had a total thyroidectomy in 1989. My endocrinologist doesn't seem concerned, but I am. He says he doubts that the medullary thyroid cancer is back. He performed a biopsy that was inconclusive, and wants to just watch and wait. Waiting for what?

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                      About tammym

                      Survivor
                      Bile Duct Cancer, Thyroid Cancer

                      MTC survivor!

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