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tfrank7370's Recent CancerCompass Activity

  • tfrank7370 has replied to a post on the message board

    I have radiation myelitis at my c5 level from EBR to my trachea. Tried neurontin, gabipenton etc with only minimum temp relief.  Have you had an mri to see what damage has been done in your spinal chord ? Ask you dr about avastin...I got longer relief from that although it's not cheap. You need to see a Neuro and get a diagnosis. 

    April 12, 2018 view post
    • tfrank7370 has replied to a post on the message board

      I was beginning to think I was the only one.   Sorry to hear you are having problems again. I am back on Avastin every 3 weeks for the next 6 months.   Have more weakness in right leg but have problems with both.  The overall weakness is what's really bothering me. I can't run any more.  Have discussed stem cell therapy with neuro-on c ologist but he says the science is not that far alongs.  ...

      November 27, 2014 view post
      • tfrank7370 has replied to a post on the message board

        I have radiation myelitis as well from overdose of radioative iodine combined with external radiation to my neck to combat thyroid cancer that moved to my trachea.  tried the same.  Lyrica, Neurontin, as well as streriods - all have short term success but eventually become ineffective.   currently on a regiment of Avastin which seems to have better long term monor relief.  Im curious to see if y...

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