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timbo187's Message Board Messages

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My father has a rare cancer - mammary analogue secretory carcinoma. He has an aggressive form. It started in his parotid. Following surgery and radiotherapy it has no unfortunately metastisized and spread to his lungs. We thought he might be able to join a trial (entrectinib) but he did not have the right mutation.

The cancer seems relatively unknown and the doctors cannot offer any form of targetted treatment.

Does anyone out there have any experience with this type of cancer?

All help/leads (however tenuous) greatly appreciated!

Tim

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