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toddlerfather's Recent CancerCompass Activity

  • ToddlerFather has replied to a post on the message board

    Currently there is no known conditions that would make papillary cancers not move forward at some point in time; there is for follicular cancers, and it's called NIFTP.  But yours could be; FNA's are not 100% precise. Mine said "Follicular", and in the end it was Follicular-Variant Papillary.  Some years ago, though, even clear cases of what is currently known as NIFTP ended up in surgical removal. So eve...

    about an hour ago view post
    • ToddlerFather has replied to a post on the message board

      That is somewhat dosage dependent, but considering recent guidance of not being useful to go beyond 100 mCi, 3 days isolation looks fine to me, if a few days of care at home to not be so close to others. 

      Yesterday at 11:46 PM view post
      • ToddlerFather has replied to a post on the message board

        While I understand the reasoning for a brain MRI at some point in the diagnostic process, I believe it would be at least the 3rd step... the first would be an ultrasound, as I already said and you are already doing one.  The 2nd would be redoing the PET, but with iodine diet plus Thyrogen stimulation. While the PET has indeed some possible difficulties imaging the brain, the more likely reason for the PET to sh...

        Yesterday at 11:41 PM view post
        • ToddlerFather has replied to a post on the message board

          A PET without Thyrogen estimulation has a high chance of not showing anything. But even so it has diagnostic value, since it measure how differentiated / undifferentiated your tumor cells are.  4 mCi is a small dose for RAI, it's just a tracer for a WBS. BTW, if your nuclear medicine facility supports, this would be a good use case for I-124 instead of I-131, which can provide more accurate lesion dosimmetry in...

          April 16 at 2:47 PM view post
          • ToddlerFather has replied to a post on the message board

            There is a lot to do on the human side before leaving it to God. It seems you need a good oncologist to even understand what's happening, before even considering some form of treatment or just hospice to ease up the last days.  What's the working theory at this point ? 

            April 08 at 10:29 PM view post
            • ToddlerFather has replied to a post on the message board

              I can't respond specifically to this center, but the principle that the immune system can respond to cancer is a fact. I will point to 3 topics in this forum, one is actually my personal case: https://www.cancercompass.com/message-board/message/all,138217,0.htm https://www.cancercompass.com/message-board/message/all,137712,0.htm https://www.cancercompass.com/message-board/message/all,85316,0.htm Note that the i...

              April 08 at 10:10 AM view post
              • ToddlerFather has replied to a post on the message board

                In the nuclear medicine facility I did my RAI, the first 3 nights were at a shielded room in the hospital, with a physicist coming every day to measure my radiation level. When I got discharged, they measured the radiation in my clothing, and discarded a piece of underwear. But while they prescribe separate sleeping, laundry and bathrooms(flushing twice every time) for a few days, I don't recall anything about eating...

                April 08 at 12:17 AM view post
                • ToddlerFather has replied to a post on the message board

                  To add to possible treatments to try, there is also DCA: https://www.dcaguide.org No experience or referrence, and I'm still working thru ALA dosage so I won't add anything else just yet in order to keep track of what works and what doesn't. 

                  April 07 at 4:16 PM view post
                  • ToddlerFather has replied to a post on the message board

                    Interesting topic. After reading a bit about DCA at https://www.dcaguide.org , I'm considering trying... but first let's see if ALA does any changes, since most texts on DCA suggest also taking ALA to avoid DCA side effects. 

                    April 07 at 3:19 PM view post
                    • ToddlerFather has replied to a post on the message board

                      Yes it is, but a bit far from NC...  ... when it comes to types of cancer, this is more of a per-MD reputation than a cancer reputation analysis, IMHO.  So from the short list, I would go thru their doctor lists on their websites, keeping notes on specific cancer clinicians and cancer surgeons. I would look for papers, conference presentations etc. from those doctors, and then come down to a list of possi...

                      April 07 at 3:31 AM view post
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                      About toddlerfather

                      Patient
                      Thyroid Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Hormone Therapy, Image Enhancement, Insurance, Lifestyle, Local Hyperthermia, Massage Therapy, Naturopathic Medicine, Photodynamic Therapy, Physical Therapy, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I was diagnosed with Thyroid Cancer in 2012, had 2 hemithyroidectomies and was hopeful that I would make a full recovery. After radioactive iodine there was still traces of Thyroglobulin with no findings in PET/CT, until end of 2016, when I was diagnosed with lung metastases. Genomics testing indicate NRAS mutation, and let's see what can be done to fight this formidable foo.
                      After receiving LDN (Low Dose Naltrexone) and High Dosage Vitamin D, the exponential growth curve has turned to a slow decline, showing incredible results of this very simple, cheap and effective treatment.
                      Now adding alpha-lipoic acid to the combo, but it's soon to say if it helps or not.

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