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twiddles's Recent CancerCompass Activity

  • Twiddles has replied to a post on the message board

    Hi there, I wish you the best and hope your Radio Frequency Ablations go well.  My husband, Dave, was late stage IV and near death when diagnosed.  The treatments and procedures gave him 3 years of mostly good quality life, even when the doctors told us he only had a month or two left if treatments failed.  And now there are even more treatments available than there were when he needed them, so I thin...

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    • Twiddles has replied to a post on the message board

      Hi Craig, Boy, you've sure had your share of troubles.  It must be so horrible, and scary, dealing with cancer while trying to raise a family and continue working.  But it sounds like you're doing quite well and have had good results with Sunitinib.  That's great news! My husband was on Sutent for about 18 months.  His hair turned white as snow!  But when he stopped taking the Sutent, his h...

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      • Twiddles has replied to a post on the message board

        My husband had brain mets, and he underwent stereotactic radiosurgery.  He had no further problems, and the brain mets basically "died" or were rendered inactive.  Subsequent scans showed the mets with no new growth for more than 2 years. Nancy

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        • Twiddles has replied to a post on the message board

          Hi Des, It certainly doesn't sound promising for your husband to be able to get healthy enough to start the new treatment.  But he sure sounds determined to get home.  What about letting him go home on Hospice care and just make him comfortable?  That way he'll still get to go home, and the hospice will make sure he's not in pain and can be kept as comfortable as possible.  I know that sounds lik...

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          • Twiddles has replied to a post on the message board

            One thing that helped my husband was that I made shakes for him.  I used Carnation Instant Breakfast mixed with milk, and I put a banana in it as well as sometimes other fruit such as a handful of frozen strawberries.  I bought one of those Magic Bullet blenders which was such a lifesaver through everything because I made sometimes several shakes a day.  The Carnation is nutritious and helped him ...

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            • Twiddles has replied to a post on the message board

              Hi, If you read through some of the posts on this forum, you'll see a lot of messages from people who were told they don't need any followup except a scan once in a while.  WRONG!  Once you've been diagnosed with cancer, especially stage III or stage IV, you need an oncologist and regular scans, more often than once a year.  Even though you are cancer free now, if and when it decides to rear its ugly ...

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              • Twiddles has replied to a post on the message board

                Hi, I thought a long time about whether to respond to this, because I don't want to scare or discourage anybody, but I think people should know:  do not take the treatment with IL-2 lightly.  It is serious, harsh treatment and you need to be in an ICU if you decide to take this treatment.  My husband, Dave, died during IL-2 treatment.  He was 67 years old.  He had stage IV RCC and had good su...

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                • Twiddles has replied to a post on the message board

                  Thank you for all your hard work!  I know how you feel...my Dave has been gone 4 months now.  I hate this new life without him...I don't know what to do now.  It's so hard to say goodbye to our loved ones. Love, Nancy

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                  • Twiddles has replied to a post on the message board

                    Thanks to everyone who answered my question, and for all the good wishes!  I appreciate your kindness and support.  My dad's surgery will be on September 28.  He lives in Houston and has local oncologists but can also go to M.D. Anderson if he needs to.  I'd say he's in good hands.  Thanks for all your prayers!

                    Twiddles

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                    • Twiddles has replied to a post on the message board

                      Thank you!  I was worried about what his recovery would be like.  Your story is encouraging.  Thanks for answering my question!

                      Nancy

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                      About twiddles

                      Caregiver
                      Kidney Cancer

                      My husband Dave was diagnosed with stage IV renal cell carcinoma in June 2008. He's had mets to both lungs (more than 30 tumors in the lungs), the thoracic lymph nodes, and one small brain metastasis. Dave is a great guy, retired from 21 years in the Air Force, and now enjoys playing with his model railroad in the basement whenever he feels strong enough to get up and down the stairs. I am a registered nurse, enjoy sports, animals, and my goal in life right now is just to do everything I can to help Dave. We live in central Arkansas, near Little Rock.

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