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ubsueg's Recent CancerCompass Activity

  • Ubsueg has replied to a post on the message board

    Thank you for you insight. I had not thought about future generations. I will make sure all famiy members who are possibly affected by this mutation know that they must be tested.

    April 20, 2018 view post
    • Ubsueg has created a new message board discussion

      Just learned that I have this mutation after genetic testing due to multiple siblings with rare type cancers. Doctors don’t have much information on this mutation...one saying it’s not a big deal but it is concerning... Maybe someone can shed some light on this for me in language I can understand. Thanks in advance

      April 19, 2018 view discussion
      • Ubsueg has replied to a post on the message board

        Thank you all for your caring words and advice. Only those affected by this understand....

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        • Ubsueg has created a new message board discussion

          Please tell me your experiences with hospice pros and cons.. How did you know it is time.. How hard was it to make the decision.. GBM 8/11

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          • Ubsueg has replied to a post on the message board

            My brother also suffered blood clots that went undiagnosed and end up with a big saddle pulmonary emboli. He was treated with heparin while in the hospital and is now being discharged with lovinox blood thinners. He has GBM also but if they didnot treat him he would die. They put a vena cava filter in while in the hospital to reduce the risk of further clots. He is on avastin and now there is double risk of bleedi...

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            • Ubsueg has replied to a post on the message board

              Please make sure he doesnot have a blood clot in his leg. It happened to my brother with GBM. Lots of swelling vague leg cramping, unable to walk easily. Doctor dismissed the swelling saying he is not concerned. He ended up with major pulmonary emboli that almost killed him. Insist on a Doppler of his legs. Brain tumor patients are prone to blood clotting..

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