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vicki38's Recent CancerCompass Activity

  • vicki38 has replied to a post on the message board

    No, Ive had the hives, rash and itching from the begining! Just was curious cause the Dr said shed never seen anyone esle with the itching.. So youve had the itching before the sandostatin? Thanks for the reply

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    • vicki38 has replied to a post on the message board

      You know its funny you mention what triggers these episodes and put bumpy roads. I though I was crazy, my husband has a race car and it is loud and shakes you like crazy. Every time Ive finshed riding in it I usualy have an episode and feel like crap after riding in it. I thought it was crazy and had thought about the car causing it, but I just blew it off!! Now I know it could be a possibilty! Wow crazy...

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      • vicki38 has created a new message board discussion

         Was wondering if anyone else gets hives and itching with there episodes? My Dr told me shes seen over a thousand carcinoid patients and no one was had itching. I know we all have different things going on with these episodes.

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        • vicki38 has replied to a post on the message board

          I am new to the site as well! I was glad to have found it, cause its nice to find someone who has the same problems as you! My husband and I do lots of research, he is my biggest supporter and keeps my head on straight lots of times! Take care and keep in touch

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          • vicki38 has replied to a post on the message board

            Its been a big help finding this site! Ive felt so alone and getting good advise really helps. I just get so down cause nothing seems to help my symptoms, all the meds I try really dont help. I just hate when the Drs tell you your a puzzle and they arent God. I will keep searching and hopefully find a Dr who can tell me what I have and hopefully fix me!

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            • vicki38 has created a new message board discussion

              Ive been to the Er room several times for my episodes and they are no help!! I get so scared because the stomach pains are so severe and the shakes are so scary! I am worried I feel so out of it, that something is going to happen to me and the ER room will not know what to do?? Any help would be appreciated. Thanks

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              • vicki38 has replied to a post on the message board

                This is my 1st day on here and this is such a relief to have found!! I have been so lost and so scared of all that is going on with my health. Thank you for your help. I live about an hour from cincinnati ohio. Ive been so miss guided from the Drs, I had a hysterectomy back in July 2011 because they thought it was my hormones. Well after the hysterectomy I was better for a few weeks then all my symptoms returned. So ...

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                • vicki38 has replied to a post on the message board

                  It has been very hard for me to find a Dr in my area that has a clue of carcinoid or what is wrong with me! Some Dr's say I have carcionid and some say I don't, my blood work dosent show anything and all my scans come back fine. Im going on 7 years of dealing with the diareah, hives, flushing and itching. I started out at the allergy Dr for about a year, to find out I have No allergies. Just within the past year I st...

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                  • vicki38 has created a new message board discussion

                    I am a 38 year old female. Ive been having the signs of carcinoid syndrome for 6 years now. I have night time diareah, severe stomach cramps, hives, flushing of my face and chest, my hands and feet turn bright red. I itch, feel really weird when this is all going on. Within the past year, after my episode is over. I will start shaken, like a seizure but Im awake. Every single mucsle in my body hurts! Was just wa...

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                    About vicki38

                    Patient
                    Stomach Cancer
                    Cancer Diagnosis, Support

                    I am a 38 year old female. I have had carcinoid syndrome for about 6 years.I have nausea and stomach pains on my left side almost everyday. Then about 5-6 times a month I have night time diareah, severe stomach cramps, pink flushing of my face and chest, my hands and feet get bright pink,hot and itch, I get hives and itch. I feel really weird when these episodes are going on. I can tell my episodes are caused by stress and different foods I eat. I have a B12 def. since 2000. I was haven memory problems thats how they found the defecincy. Within the past year I have started haven these shakes, almost like a seizure but awake and chills I feal weird after the shakes stop. Then my mucles hurt so bad the next day. I have no sex drive what so ever! None of my blood work or scans find any signs of carcinoid. I would just really like some help in the right direction...

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