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vtoole's Recent CancerCompass Activity

  • vtoole has replied to a post on the message board

    Christobel...I remember you on this blog site...I am sorry to hear of your husband’s current challenges... I know MDAnderson in Houston sees patients from all over the globe. Perhaps, you might contact Dr. Arlene Seifert Radtke, whom I have recommended numerous times...I wish much luck on this continued journey...

    April 06 at 7:44 PM view post
    • vtoole has replied to a post on the message board

      That is so very exciting to hear...I am convinced MDA and Dr. Arlene Seifert Radtke are the very best with this rare form of cancer...she has done extensive research and works with many patients....continued luck and success...

      April 06 at 7:39 PM view post
      • vtoole has replied to a post on the message board

        Hello VinceC...So sorry for you and your wife’s journey...your instinct to get in touch with either/both MDAnderson and Sloan Kettering are exactly the right idea! Having had personal experience with Arlene Seifker Radtke at MDAnderson gives me great confidence in her abilities. She is one of the doctors in the Urology Dept there who has done and continues to do research on this rare cancer. She developed the origina...

        March 16 at 2:48 PM view post
        • vtoole has replied to a post on the message board

          Hello All...it has been quite some time since I’ve been on this thread. If you go through the thread you will see that I highly recommend Dr. Arlene S. R. at MDA! I wish you, Daniel, the very best...please send my regards to Dr. A SF... I continue to refer people to her always!!! Vivian Toole

          February 22 at 6:31 PM view post
          • vtoole has replied to a post on the message board

            Hi Merel, I highly recommend Dr. Arlene Seifert Radtke at MD Anerson. Dr Radkte’s team 713-745-7575. I have not had personal contact/experience with Sloan Kettering but have seen several people highly recommend a Dr. Rosenberg there for this cancer. There are immunotherapy trials/treatments available, but he sure that you are tested for genetic abberations that actually will likely respond well to them. ...

            March 28, 2018 view post
            • vtoole has replied to a post on the message board

              I was wondering the same thing. I recall someone (was it you?) who was doing “bikus urachas?” I think it would be wonderful to do a fund raiser for this rate and mostly unchartered disease.

              March 11, 2018 view post
              • vtoole has replied to a post on the message board

                Sloan Kettering in NY is very familiar with this cancer. I believe the doctor’s name there is Rosenbeeg. That hospital is one of the best in the country for cancer and does has experience with it! Good luck!

                February 24, 2018 view post
                • vtoole has replied to a post on the message board

                  This is a site for people with urachal adenocarcinoma!

                  February 21, 2018 view post
                  • vtoole has replied to a post on the message board

                    Well, then, I am so grateful that they will follow the guidelines of MDAnderson!!! I went back on the thread and noticed I had been in touch with you before and had recommended MDA. I am grateful you can combine the two doctors/hospitals. That’s really how our medical system should work! I wish the very best for your son and your husband. Most especially, I am thinking of you in the difficult role of caretaker. Best ...

                    January 02, 2018 view post
                    • vtoole has replied to a post on the message board

                      Hello Mark’s Mom, My goodness, you surely have your hands more than full. This caretaking of two - not just one - people must be so hard on you! My thoughts are with you. My husband had the partial cystectomy at the same time as the en bloc resection and he was 59. He was back at work part time within a week...Your son should be doing vwell within short order. They had my husband up and walking the day af...

                      January 02, 2018 view post
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                      About vtoole

                      Caregiver
                      Bladder Cancer
                      Chemotherapy, Clinical Trials and Research, Genetics, Naturopathic Medicine, Radiation, Recipes

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