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wickedinns's Message Board Messages

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On Jan 15, 2020 2:45 AM Maryshope wrote:

I am so glad to see someone succeeded at what my son was trying to do with THC. The problem here in Texas is lack of support. THC is illegal for the most part. Few doctors will participate in helping patients who do not take chemotherapy. Radiation was not an option. By the time we knew we had to leave the state, my son was too weak, and I had had surgery and was not very well. It was all very depressing for him. No one seemed to care, and he finally just gave up. I want to do everything in my power to take the stigma, legal and personal, off using marijuana for its medicinal capabilities. "It's not studied enough," everyone says. The country makes it illegal so it can't be tested or studied. Unfortunately the persons making laws have to keep getting re-elected, and to get re-elected, they need money - so much money from chemical-making pharmaceutical companies. Where do you live Wickedinns and Irinna7 that you can access THC for treatment? As cancers are different, so is treatment, it would seem. THC obviously cannot cure all cancers, but if it cures just one - or two - or maybe more, maybe a dent could be made in this awful curse CANCER. My son will still be dead, and my heart will still be broken, but if THC could help others, why won't they help? Truly the greatest sin has to be GREED!  Irinna7 I so hope you get the right formula to help. It's out there. 

I live in Canada and hubby has a medical prescription and we have health Canada permission to have it grown and have the oil made for us. It is a science in itself to have it done properly. I know someone who refused chemo/radiation and had her breast removed and used lots of cannabis...she is doing very very well almost four years later. I truly believe it has helped my hubby in many ways. I agree that greed prevents it from being studied properly. I watched a docuseries that shows there are countries that do study it and its benefits. Here they have legalized it but it has caused more problems then not because it is government controlled and not enough thought was put into it. I believe it should have been just for medical purposes that it was legalized because recreationally it has caused a lot of problems do to ignorance ... anyway...just my thought...

my heartfelt blessings to all in this battle and those who fight along side them...

On Jan 15, 2020 12:29 AM vicksvaporub wrote:

Hello all,

Five years ago my mum had colon cancer - with liver, thyroid and lungs metastasis. It took 4 months for her to have surgery to remove the tumour from her colon from the time it was diagnosed.

Because she is an old woman, my mum didn't do any chemo, instead, she changed her diet from day one she found out she had cancer. She went vegan, ate only fresh food (nothing from supermarket, unless it was fresh veggie, fruits etc), no sugar, only wholegrain, a lot of vegetables and pulses, high dose of vitamic C and other vitamins, a lot of water (sometimes with lemon, sometimes with sodium bicarbonate) and walking. She also tried some alternative medicine. The idea behind to change her diet was to make her body strong enough to fight the cancer by only eating food packed with natural nutrients.

The surgeon said he didn't spot any cancer on her liver during the surgery. Her post exams, her thyroid and liver was clear from cancer, and the ones in the lungs were shrinking. 

To this day, she's cancer free. I'm not sure what worked for her.

I'm not discouraging anyone of giving up their conventional treatment, but you still can eat healthy along the treatment. Cut down all sugar (including fizzy drinks and juice from cartoons), white wheat, any kind of processed food, no alcohol, no cafeine, no animal products. It's important even to watch the oil you cook. You have to re-learn about food and cooking. There's no harm to try. There are so many great blogs you can follow to learn more about healthy cooking.

I also found this testimonial below:

https://news.sky.com/story/i-was-given-weeks-to-live-but-the n-my-cancer-disappeared-11383801"" target="_blank" rel="nofollow">https://news.sky.com/story/i-was-given-weeks-to-live-but-the target="_blank" rel="nofollow">https://news.sky.com/story/i-was-given-weeks-to-live-but-the

I also heard about mistletoe cancer treatment. Look it up.

Cancer works in different ways, so it's hard to know what will work for you and what will not. Just keep fighting.

Lots of love to you all xx

Thank you so much for this ! My struggle is trying to get someone who was never overly into health do all of this. It has been a struggle but I still do the best I can without him "noticing". I am a firm believer you have to make the body and mind as string as possible to fight this illness. 

 

On Jan 14, 2020 9:15 PM Irina7 wrote:

On Jan 14, 2020 2:44 PM Wickedinns wrote:

On Jan 14, 2020 9:12 AM Irina7 wrote:

On Jan 14, 2020 12:32 AM Wickedinns wrote:

On Jan 13, 2020 10:05 PM Irina7 wrote:

Oh My God, I am so sorry four your loss. It's so hard to lose the persons we love. We are never ready for a moment like this.

My husband has colon cancer with liver metastasis at his 38 years old. I would like to find a solution for him and I am so sad now,  because I thought that THC really cures cancer. But it doesn't always work.

Life is so cruel. :-(

Hello

i haven't been on this site for a very long time but I rec'd notice of this post. I would like to say how sorry I am for people who are battling and for those who have lost that battle.

my hubby is almost four years in since diagnosis (Mar 2016).. stage 4 esophageal cancer with Mets to the liver suspicious lymph node and adrenal gland...He at first had chemo...failed...then radiation...failed...and lots of sugar (doctors orders...not mine) and then a stent so he could eat...anyway...when things failed I got word of rick Simpson oil... so I found someone who is experienced in this and hubby was put on VERY high doses of THC and I changed up his diet to as healthy as I could. A few months later he was excepted into a clinical trail for keytruda. When they were doing tests etc his stent popped right out to everyone's surprise...something was working !!! Anyway... a few months on keytruda his tumour is now gone and the liver lesions are small and may now be scar tissue and lymph and adrenal...long gone..What worked... diet, cannabis, keytruda...a combo...who knows,..all we know is we are happy for what we have. My motto...keep on keeping on ...never give up hope ! There is another site I use... smartpatients... you will find people there who have tons of very good info and tons of support.

good luck and blessings to all

w

Hello Wickedinns, 

Thank you for your reply. 

Can you please give me more details about the dosage of cannabis oil that your husband took for curing his cancer? What was the concentration of the oil? Did he take CBD also? And how did he change his diet?

Thank you. 

Irina

Hi Irina

The THC concentration was very high to start... I want to say upward to 50 % and about two grams a day which he took in cap from. It was made for us by someone who really knows his stuff. He did that for more than a year and then was switched to high concentration of CBD. After three years of doing this he is now on a cbd/THC combo of about 50 % but only takes 1/2 gram a day and it is between a tincture and caps. It was time for him to take a break from high doses.

his diet at first was not good... doctors orders were to eat foods that ended up having high sugar content... I hated it but it wasn't my decision... after chemo/radiation failed I took the bull by the horns and hit him with power packed smoothies that I made up with no sugar (except some maple syrup) including fruits, olive or avocado oil, spinach, a whole avocado and I also tried to sneak in some protein powder but he hated that so I stopped with that. I bought organic everything I could, made power packed souls with beans and lentils etc, no red meat, cut back bread except organic sour dough, as dairy free as possible etc etc... it was a battle of wills most times because my hubby was a sugar freak (still is) and a meat and potato kind of guy. There is no proof any of this was what helped him but I firmly believe the combo of everything did. He is still doing pretty good except he is now eating more of what he wants..including sweets which makes me cringe but it in the end is his life and it was causing too much friction...

read up on "Chris beat cancer" and Kris Carr... they have lots of info which maybe you will find useful. I now kind of work in the background...lol.. putting a "gentle" spin on the healthy aspect...

please take care of you too !!! It is important so you don't burn out... I did and I am just climbing back up now !!!

w  

Thank you very much for  this information. 

I am so glad to hear that there are personns who won the battle with cancer.

I wish you all the best to you and your husband. 

Irina

We haven't won yet Irina... just staying the course of being alive ..one day at a time...

Keep on keeping on....

w

On Jan 14, 2020 9:12 AM Irina7 wrote:

On Jan 14, 2020 12:32 AM Wickedinns wrote:

On Jan 13, 2020 10:05 PM Irina7 wrote:

Oh My God, I am so sorry four your loss. It's so hard to lose the persons we love. We are never ready for a moment like this.

My husband has colon cancer with liver metastasis at his 38 years old. I would like to find a solution for him and I am so sad now,  because I thought that THC really cures cancer. But it doesn't always work.

Life is so cruel. :-(

Hello

i haven't been on this site for a very long time but I rec'd notice of this post. I would like to say how sorry I am for people who are battling and for those who have lost that battle.

my hubby is almost four years in since diagnosis (Mar 2016).. stage 4 esophageal cancer with Mets to the liver suspicious lymph node and adrenal gland...He at first had chemo...failed...then radiation...failed...and lots of sugar (doctors orders...not mine) and then a stent so he could eat...anyway...when things failed I got word of rick Simpson oil... so I found someone who is experienced in this and hubby was put on VERY high doses of THC and I changed up his diet to as healthy as I could. A few months later he was excepted into a clinical trail for keytruda. When they were doing tests etc his stent popped right out to everyone's surprise...something was working !!! Anyway... a few months on keytruda his tumour is now gone and the liver lesions are small and may now be scar tissue and lymph and adrenal...long gone..What worked... diet, cannabis, keytruda...a combo...who knows,..all we know is we are happy for what we have. My motto...keep on keeping on ...never give up hope ! There is another site I use... smartpatients... you will find people there who have tons of very good info and tons of support.

good luck and blessings to all

w

Hello Wickedinns, 

Thank you for your reply. 

Can you please give me more details about the dosage of cannabis oil that your husband took for curing his cancer? What was the concentration of the oil? Did he take CBD also? And how did he change his diet?

Thank you. 

Irina

Hi Irina

The THC concentration was very high to start... I want to say upward to 50 % and about two grams a day which he took in cap from. It was made for us by someone who really knows his stuff. He did that for more than a year and then was switched to high concentration of CBD. After three years of doing this he is now on a cbd/THC combo of about 50 % but only takes 1/2 gram a day and it is between a tincture and caps. It was time for him to take a break from high doses.

his diet at first was not good... doctors orders were to eat foods that ended up having high sugar content... I hated it but it wasn't my decision... after chemo/radiation failed I took the bull by the horns and hit him with power packed smoothies that I made up with no sugar (except some maple syrup) including fruits, olive or avocado oil, spinach, a whole avocado and I also tried to sneak in some protein powder but he hated that so I stopped with that. I bought organic everything I could, made power packed souls with beans and lentils etc, no red meat, cut back bread except organic sour dough, as dairy free as possible etc etc... it was a battle of wills most times because my hubby was a sugar freak (still is) and a meat and potato kind of guy. There is no proof any of this was what helped him but I firmly believe the combo of everything did. He is still doing pretty good except he is now eating more of what he wants..including sweets which makes me cringe but it in the end is his life and it was causing too much friction...

read up on "Chris beat cancer" and Kris Carr... they have lots of info which maybe you will find useful. I now kind of work in the background...lol.. putting a "gentle" spin on the healthy aspect...

please take care of you too !!! It is important so you don't burn out... I did and I am just climbing back up now !!!

w  

On Jan 13, 2020 10:05 PM Irina7 wrote:

Oh My God, I am so sorry four your loss. It's so hard to lose the persons we love. We are never ready for a moment like this.

My husband has colon cancer with liver metastasis at his 38 years old. I would like to find a solution for him and I am so sad now,  because I thought that THC really cures cancer. But it doesn't always work.

Life is so cruel. :-(

Hello

i haven't been on this site for a very long time but I rec'd notice of this post. I would like to say how sorry I am for people who are battling and for those who have lost that battle.

my hubby is almost four years in since diagnosis (Mar 2016).. stage 4 esophageal cancer with Mets to the liver suspicious lymph node and adrenal gland...He at first had chemo...failed...then radiation...failed...and lots of sugar (doctors orders...not mine) and then a stent so he could eat...anyway...when things failed I got word of rick Simpson oil... so I found someone who is experienced in this and hubby was put on VERY high doses of THC and I changed up his diet to as healthy as I could. A few months later he was excepted into a clinical trail for keytruda. When they were doing tests etc his stent popped right out to everyone's surprise...something was working !!! Anyway... a few months on keytruda his tumour is now gone and the liver lesions are small and may now be scar tissue and lymph and adrenal...long gone..What worked... diet, cannabis, keytruda...a combo...who knows,..all we know is we are happy for what we have. My motto...keep on keeping on ...never give up hope ! There is another site I use... smartpatients... you will find people there who have tons of very good info and tons of support.

good luck and blessings to all

w

On Jan 02, 2019 9:41 PM bobdonaghy wrote:

I was dx sept 2015 stage 4. folfox with herceptin since then. So, yes you can survive longer than a year. Keep up the good work and keep a positive attitude. 

Hi Bob So happy to see you posting on here again. I haven’t been on here for a while but I would scan for you when I was... hubby is still hanging in. He hasn’t had keytruda since July 2018 because his enzymes have been crazy...up and down ...so he was three or four treatments shy of the two year trial. He was put out of the trial but his scan in November is still very good...next one in about a month. They will monitor for a year and then back to our own doctor. Prayers always !!! W :)

On Oct 08, 2018 12:15 AM cscottandcarly wrote:

And that is great info if the doctor knew that. But he doesn't. He straight up said that it's about lawsuits and fear of doing anything off protocol. Anything. With the horrible chance offered by the chemo, I'm confused by the reticence to try other things.

Scott's retired doctor, Dr. Fisher was so willing to. Support our putting our hope into other things when we saw such positive results especially when the known pathetic-protocols prognosis. Dr Fisher acted like we still had the right to full oncological care even if we risked our life with non-US protocol. He knew Scott was existing on borrowed time but he didn't want that to be true. 

This new guy didn't even want to do a blood test on Scott since he's seeing Dr Blanning for mistletoe. It's like he doesn't want to be a part of Scott's team anymore. It's weird.

Yes Carly it is weird but that is the way the rumble.... our first oncologist was brutal and everything was her way or no way... she even looked at me and to,d me she is the one they send the ones to who aren’t going to make it....well that was in summer of 2016...he is still here and fighting. Our new oncologist is only for the clinical trial hubby is on...he is so much more positive and does not discuss time lines but he isn’t a pusher either...mostly because he has to follow the protocol of the trial ... Keep up the fight.... my motto is never say never...live everyday and pray for the best.... Regards Wanda

On Oct 01, 2018 2:22 PM cscottandcarly wrote:

Yeah, we're definitely not pleased with the reading of the scan, and I'm sure we will be even more displeased after seeing the oncologist this morning. 

We only want the truth so whatever is said, we are okay about it, but it sucks to get bad news. 

We are back on the mistletoe so we know things will improve, even if we have to change kinds of mistletoe. 

I plan to detail all of the news from both appts later today.

I don't think I've seen a message from you Farah, but I'll look.

I'll be sure to update soon.

You are amazing Carly...don’t ever give up hope ! I don’t use this site very often...I prefer smart patient...much more user friendly but I try and keep up with you... My hubby is almost finished two years of keytruda but it attacked his liver and now we wait to see the next step. He has been on high dose THC/ CBD cannabis since six months after dx... I am a believer in health and positive mind as well as natural treatments but it is not my life so I can only do the best I can. Such a long exhausting story over the last two and a half years... anyway... keep up the great work...prayers and hope!! Wanda

On Sep 25, 2018 12:56 AM cscottandcarly wrote:

OMG that is amazing! Thank you soooooo much!  I actually tried to use this site recently, but couldn't get the order to go through. It did look like it should work, but no matter what I did, it wouldn't go through. So, with the new regulations and my failed attempt to order from mistletoepharmacy.com "" target="_blank" rel="nofollow">http://mistletoepharmacy.com " target="_blank" rel="nofollow">mistletoepharmacy.com , who sells Helixor directly, I never went back to try it at urielpharmacy. 

Scott is a patient of Dr. Blanning's, too and I have just called him today to ask his advice.  

I also would like to say that I reached out to Believe Big, the organization pushing for Mistletoe and raising funds for the FDA approved Johns Hopkins study, and they immediately responded in the most heartfelt and helpful way. They were my original resource to find Dr. Blanning, and he is so wonderful. 

Believe Big informed me that there are two places in Colorado that do Mistletoe Infusion IV therapy, but I don't know yet anything about it. I have my consult call with the Boulder clinic tomorrow. I do know the first real consultation with them is almost $500, and Believe Big provides a grant to pay for the consultation. How much the treatment is, I do not know. I will keep you all posted on that.

Oh, hey, I just talked to Dr. Blanning, and we have an appointment with him for Thursday. I love that man. He did confirm the situation with the other pharmacy, so I am so totally relieved. I can't tell you how good it feels to talk to Dr. Blanning. I should have called him immediately when Scott's oncologist put us on Cancer Red Alert.

Dr. Blanning is a true doctor. Just like Dr. Fisher, who was Scott's oncologist, and sadly retired just as this growth began. Scott was with him from the day he visited us while still in the hospital after the ER visit that led to the Big C surgery, etc. From Day One, Dr. Fisher was so supportive of our choices. Maybe if we had not tried and failed at chemo and radiation, he would not have been so supportive of doing these different treatments, but whatever the reason, he made us feel like it was worth it to try. I also think he probably knew the traditional treatments offeredScottlittle chance for survival. 

I hope doctors know how much empowering us as patients means to our survival.  The taking away of choices and options is what makes our hope evaporate.  Scott did what they said. Dr. Fisher and Dr. Blanning stood by us and supported us and empower us, and I don't know what we would we have done.

I hope others are lucky enough to happen upon good doctors. I don't think we would have had the energy or knowledge at the beginning of this journey to even recognize what a doctor looked like. 

When we talked to Fisher about Mistletoe, he immediately started to research it. He didn't say NO. He didn't ridicule the idea. He didn't help us find the medicine, but he didn't lie to us about it.His "" target="_blank" rel="nofollow">http://it.His " target="_blank" rel="nofollow">it.His honesty, and his willingness to show that he didn't know EVERYTHING gave us all we needed to keep researching it.He "" target="_blank" rel="nofollow">http://it.He " target="_blank" rel="nofollow">it.He gave us facts that he knew, and let us do what seemed right. It seems that unless you get a doctor like Fisher, you might not really get the truth.  That's really terrible and seems against the physicians oath.

Doctors who immediately quash all ideas of doing something off protocol give patients no hope if the traditional treatments fail. Then what hope is left?

I just took a look at MD Anderson's colon cancer prognosis calculator, and I plugged in Scott's data. As a 42 year old, white male with a poorly differentiated Stage IV Colon Cancer diagnosis, he had a 14% chance of living to 3 years. That's WITH treatment.  

Thank God that we NEVER asked "how long".

He has treated his cancer successfully for 3 years with cannabis oil and mistletoe and he is definitly not on death's doorstep. He is in for another fight, but we are sure that if we can just get this treatment, we can win.

But how can we make sure everyone can get it?

I am storing all this info for future reference!!! My hubby is coming to an end of a clinical trial...actually had to stop just short of it as it attacked his liver... a doctor I know in Germany put me in touch with her oncologist daughter in England and she suggested mistletoe... all this info is great !!! Prayers for Scott...you have worked so hard and been a wonderful advocate and strong supporter !!! Keep the faith !!!!! Wanda

On Sep 17, 2018 4:31 PM SallyTN wrote:

I'm a 36yo mother of a young toddler, just diagnosed with stage IV (mets to liver) EC last month. I'd had horrible reflux throughout pregnancy that of course got written off as pregnancy-related. It continued to a lesser degree afterwards and I thought it was just from the weight I'd kept on, until I went to doctor with chest pain last month. I've just started IV oxaliplatin and oral xeloda a few days ago and am feeling rough. I'm at work right now (I am current breadwinner as husband is finishing graduate school) and need a PEP TALK please!

Please tell me that mentally this will get better? I'm still mourning the inability to have another child (we were in process of trying - thank God it hadn't happened yet) which seems silly as I have to fight for my life now. 

Oh and as a special "screw you" from the oxaliplatin, it is excruciatingly painful to cry right now.

Hi Sally My husband was dx March of 2016... adenocarcinoma stage 4 with nets to the liver...swollen lymph node and adrenal gland. Prognosis was grim but he has an amazing attitude as do I... he was also her 2 negative. He had five rounds of oxyplatin, exloda and another I forget...it was discontinued as it was not doing anything and he became blocked. He was scheduled for ten rounds of radiation but that totally shut him down after six rounds and he had a stent placed. Not all chemo work for all people but we didn’t stop there. I put him on a very healthy high calorie diet and high doses of cannabis. Then two months later we went to see if he would be a candidate for a clinical trial for keytruda. While testing him his stent came right out...a real plus !!! He was also found to be a candidate. He started in the trial end of October/ first of November 2016... we haven’t looked back. By January 2017 his tumour is either too small to see or gone alondpg with everything else except one still shrinking liver lesion. They are not even sure right now if it is even cancerous. He has had some ups and downs with the jpkeytruda but nothing so bad that we couldn’t get through it. He did have to stop it in August because his liver enzymes went too high and was put on prednisone. They have come down to an almost normal level. His last scan sept 10 showed everything the same (from the pictures as doc didn’t have the written report yet). We will have more answers next appointment mid October where more decisions will be made. He was just shy if his two year trial end so a decision will be made whether to continue the last four treatments or monitor for now. So..there is always hope... we are big believers in that. You will have your ups and your downs but you can do it !!! Keep the faith and a good attitude. Hubby and I are in this together !!! I am his biggest fan and advocate... but we too sometimes butt heads...lol... he doesn’t always like what I tell him to eat so we have learned to compromise... My hubby was just shy of 61 when dx Good luck...stay strong...you have so much to live for !!!! Wanda
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